| Directory > Health > Conditions and Diseases > Blood Disorders > Anemia > Fanconi Fanconi Anemia Fact Sheet - University of Pittsburgh
Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of
Human Genetics, including links to support and diagnosis resources.
http://www.pitt.edu/~edugene/Fanconi.pdf
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Adam Day
Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a
donation to the Fanconi Anemia Research Fund.
http://www.adam.interactiveinc.com/
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Family Village: Fanconi Anemia
Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and
areas where one can learn about the disease.
http://www.familyvillage.wisc.edu/lib_fanc.htm
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International Fanconi Anemia Registry
Provides contact information, and an overview of what the study aims to achieve.
http://clinfo.rockefeller.edu/fanconi/ptrecrt.html
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Yahoo! Groups: fanconi
Discussion list for fanconi sufferers.
http://groups.yahoo.com/group/fanconi/
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Yahoo! Groups: blackfan
Open mailing list for Diamond Black Fan Anemia sufferers.
http://groups.yahoo.com/group/blackfan/
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Fanconi Anemia Web
An informational site for this disorder.
http://members.tripod.com/fanconianemiaweb
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Alex and Matt Pearl
Personal stories of two children fighting Fanconi Anemia.
http://www.alexandmatt.com
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B Positive, Inc.
A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis
and St. Charles Missouri metro areas.
http://www.bpositiveinc.com
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Fanconi Anaemia
A rare disorder found in children that involves the blood and bone marrow. The symptoms include
severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
http://www.cancerindex.org/ccw/fanconi.htm
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Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic
Diseases, including support resources.
http://www.mazornet.com/genetics/fanconi_anemia.htm
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Fanconi Anaemia
A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments,
medical information and a kids area.
http://www.fanconi-anaemia.co.uk
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Fanconi Canada
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia
and to serve as a support network for affected Canadian families.
http://www.fanconicanada.org
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International Fanconi Anemia Registry
A study being done on patients with fanconi anemia to obtain clinical and genetic information.
Genetic counseling and dietary instruction will be provided.
http://clinfo.rockefeller.edu/fanconi/
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Diamond-Blackfan Syndrome
A definition, epidemiology, clinical features, complications, investigations and management.
http://www.icondata.com/health/pedbase/files/DIAMOND-.HTM
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Fanconi Anemia: the Frohnmayer Family's Experience
The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi
anemia, an inherited, usually fatal illness.
http://darkwing.uoregon.edu/~lfrohn/
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Fanconi Anemia Research Fund
To find effective treatments and a cure for this disease, and to provide education and support
services to affected families worldwide.
http://www.fanconi.org/
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Hope for Henry
This web site is dedicated to helping people learn more about what a special young man Henry is and
to educate everyone about the disease he is fighting, Fanconi anemia.
http://www.hsg.org/
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