| Directory > Health > Conditions and Diseases > Cardiovascular Disorders > Heart Disease > Congenital Heart Defects Society of Windsor and Essex County
Ontario organization for persons affected by heart defects and their families. Includes information
about conditions, statistics, memorials and personal stories, and links to related sites.
http://www.hdswindsor.org
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Heart Disease Online
A collection of articles on the different kinds of congenital heart defects, including their
treatment by surgery, written in simple, non-technical language.
http://www.heartdiseaseonline.com
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Fontan Operation
Devoted to explaining this procedure, used to treat complex birth defects of the heart like
hypoplastic right and left heart syndrome and single ventricle.
http://www.FontanOperation.com/fontan.htm
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International Society for Adult Congenital Cardiac Disease
The site offers resources for doctors and other health-care professionals in the field of ACHD and
for ACHD patients. Visitors can search for ISACCD members.
http://www.isaccd.org/
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CongenitalHeartDefects.com
Information, resources and support for families and individuals dealing with congenital heart
defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
http://www.congenitalheartdefects.com
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Dextrocardia with Situs Inversus
Good information on the extremely rare condition of Dextrocardia with Situs Inversus. Causes,
treatment, pictures and a support forum are available to ask others affected by this disorder.
http://www.laughs.com.au/sid/
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American Heart Association
The AHA website is a simple introduction to the concept of congenital heart disease, with layperson
explanations of the various conditions, tests for diagnosis and treatment options.
http://www.americanheart.org/presenter.jhtml?identifier=1477
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Congenital Heart Disease Treatments
Short and simple explanations of the different procedures used in treating heart birth defects.
http://www.americanheart.org/presenter.jhtml?identifier=4580
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Feeding Your Infant With Congenital Heart Disease
American Heart Association gives details on baby's growth, how to feed your baby, feeding tips,
breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart
medication and feeding and looking ahead.
http://www.americanheart.org/presenter.jhtml?identifier=4885
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AMA: Statement for Health Care Professionals
Guidelines for evaluation and management of common congenital cardiac problems in infants,
children, and adolescents. From the committee on congenital cardiac defects of the council on
cardiovascular disease in the young.
http://www.americanheart.org/presenter.jhtml?identifier=1210
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Our Little Braveheart
Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
http://pages.ivillage.com/stephandjake/braveheart/
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Adult Congenital Heart Association
Information, resources and support for adults with congenital heart disease.
http://www.achaheart.org/
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Cyanotic Congenital Birth Defects
Information on a wide variety of congenital heart defects, from Mama's Health.
http://www.mamashealth.com/cyanotic.asp
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Mamas Health
Contains a lot of information about acyanotic congenital defects.
http://www.mamashealth.com/acyanotic.asp
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Coping with Congenital Heart Disease in Your Baby
Article with some useful information, published by The American Academy of Family Physicians.
http://www.aafp.org/afp/990401ap/990401d.html
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Persistent Pulmonary Hypertension of the Newborn
A definition along with look at the diagnosis, treatment and the prognosis, from the University of
Washington Academic Medical Center.
http://neonatal.peds.washington.edu/NICU-WEB/pphn.stm
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CHD Awareness Day
The Children's Health Information Network has brought global attention to the dreaded problem of
Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
http://www.tchin.org/aware.htm
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Miami Children's Hospital
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual
pictures and a lot of information about each. A form on-site to ask questions or give comments.
http://www.pediatricheartsurgery.com
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Heart Defects: Truncus Arteriosus Type 1
Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.
http://www.childrenheartinstitute.org/educate/defects/truncus1.htm
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Ventricular Septal Defect
VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the
two lower chambers of the heart. An article from About.com with Richard N. Fogoros.
http://heartdisease.about.com/library/weekly/aa020898.htm
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Palliative Operations
The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot,
that lead up to the final correction surgery.
http://heartdisease.about.com/library/weekly/aa112397.htm
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MedicineNet
Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
http://www.about-heartdisease.com
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HLHS Information
Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the
hospital, surgeon, and insurance company.
http://www.hlhsinfo.homestead.com
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Acyanotic Congenital Heart Defects
Describes PDA, coarctation of the aorta, ASD, VSD, AVSD, AS, PS, tetralogy of fallot, TGA, TAPVR,
truncus arteriosus, tricuspid atresia, and HLHS.
http://www.mamashealth.com/Acyanotic.asp
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Resources from California State University
Very extensive list of congenital heart diseases with links to sites dealing with that particular
disease. Information to help parents and provide support.
http://www.csun.edu/~hcmth011/heart/
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CHD Support Graphics
A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects
of the heart.
http://heartdisease.about.com/chdgraphics.htm
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Minimal Invasive Congenital Heart Surgery
An article about treating birth defects of the heart using this techniques.
http://heartdisease.about.com/library/weekly/aa011198.htm
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Oregon Health Sciences University
Congenital heart defects site with citations to other articles on the specialty.
http://www.ohsu.edu/cliniweb/C14/C14.240.400.html
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About.com
Information about congenital heart defects, and February 14th being recognized as a day for hearts.
http://heartdisease.about.com/blchd.htm
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Fetal Heart Surgery - The Issues
The fascinating concept of operating on heart disease while a baby is still unborn may soon become
reality. Read about the issues, the controversies, the potential.
http://heartdisease.about.com/library/weekly/aa022298.htm
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Grown Up Congenital Heart Patients Association (GUCH)
Provides support and advice to adults and teenagers born with CAD. Offers information sheets on
topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
http://www.guch.demon.co.uk
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The Children's Heart Society
Information about this non-profit, volunteer based support group, dedicated to helping families
affected by Congenital Heart Disease/Defects.
http://www.childrensheart.org/
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Congenital Heart Diseases Their Study and Treatment
A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)
http://www.redtail.net/owc
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Congenital Heart Disease Information and Resources
Interactive forums, Internet links, and peer-reviewed informational materials for families, adults
with CHD, and health professionals.
http://www.tchin.org
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Hearts Of Hope
Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome
(HLHS). Help in finding relevant information and links, especially in Australia.
http://www.heartsofhope.iinet.net.au/
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