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Search Results

The Luke and Rachel Batten Foundation
Created to engage in education and medical research toward diagnosis, treatment and/or cure of
Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
http://lrbf.org
Reviews Rating: Not yet Rated Whois Check

seeAbility - Juvenile Battens Disease
An in depth article on this disorder, includes the stages of the disease and the symptoms.
http://www.seeability.org/randd/jboverview.htm
Reviews Rating: Not yet Rated Whois Check

Batten Disease Support and Research Association
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten
Disease patients.
http://www.bdsra.org/
Reviews Rating: Not yet Rated Whois Check

Nathan's Battle
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a
cure.
http://www.nathansbattle.com
Reviews Rating: Not yet Rated Whois Check

Batten Disease Family Association
Information about the BDFA, which provides supportive, informative, networking for the families,
carers and professional giving care to children and adults with this disease in the United Kingdom.
http://www.bdfauk.freeserve.co.uk/
Reviews Rating: Not yet Rated Whois Check

Batten Disease Information Page
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/batten.htm
Reviews Rating: Not yet Rated Whois Check

The Natey Foundation
Information for parents and families of Battens victims.
http://www.nateyfoundation.org/
Reviews Rating: Not yet Rated Whois Check

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