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Directory > Health > Conditions and Diseases > Genetic Disorders > Batten

Web Sitesi

The Luke and Rachel Batten Foundation
Created to engage in education and medical research toward diagnosis, treatment and/or cure of
Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.

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seeAbility - Juvenile Battens Disease
An in depth article on this disorder, includes the stages of the disease and the symptoms.
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Batten Disease Support and Research Association
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten
Disease patients.

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Nathan's Battle
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a

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Batten Disease Family Association
Information about the BDFA, which provides supportive, informative, networking for the families,
carers and professional giving care to children and adults with this disease in the United Kingdom.

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Batten Disease Information Page
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
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The Natey Foundation
Information for parents and families of Battens victims.
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