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Ectodermal Dysplasia
Directory > Health > Conditions and Diseases > Genetic Disorders > Ectodermal Dysplasia

Web Sitesi

NORD: Ectodermal Dysplasias
Offers synonyms, a general discussion and resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias
Reviews Rating: Not yet Rated Whois Check

Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and
contact details.
http://www.ectodermaldysplasia.org/
Reviews Rating: Not yet Rated Whois Check

The Ectodermal Dysplasia Mailing List
Includes instructions on joining the list, FAQs and links to further resources.
http://hometown.aol.com/charliein/ed/home.html
Reviews Rating: Not yet Rated Whois Check

National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting
scientific research. Includes a newsletter, publications, FAQs and a list of services.
http://www.nfed.org/
Reviews Rating: Not yet Rated Whois Check

The Andy Fund
Describes the health condition of a boy who was born with ectodermal dysplasia with immune
deficiency caused by a mutation on the fourth part of the NEMO gene.
http://www.andy.org.mx
Reviews Rating: Not yet Rated Whois Check

The CaF Directory
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal
diagnosing.
http://www.cafamily.org.uk/Direct/e14.html
Reviews Rating: Not yet Rated Whois Check

 


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