| Directory > Health > Conditions and Diseases > Genetic Disorders > Fragile X Syndrome Living with Fragile X
A families acount of raising 3 children with Fragile X.
http://fragilex.ca
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Fact Sheets for Health Professionals: Fragile X Syndrome
From the Victorian Government, Australia.
http://hnb.dhs.vic.gov.au/commcare/yafs_yf.nsf/bced7550634b825a4a25676c00482e1b/1d5baac3ccee727....
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Online Support Group
Support group for Family's who are dealing with Fragile X Syndrome.
http://groups.yahoo.com/group/fragilex/
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Queensland Fragile X Association
About QFXA, news, events, links and contacts. Also information of fragile X syndrome.
http://cwpp.slq.qld.gov.au/qldfragilex/
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Conquer Fragile X, Inc.
Creating a virtual research center in Israel to find a cure.
http://www.conquerfragilex.org
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Carolina Fragile X Project
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and
the agencies that serve them.
http://www.fpg.unc.edu/~fx/
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Fragile X Association of Australia
Information on this disease, medical aspects, education, references, contacts and what's new in
Australia
http://www.ozemail.com.au/~fragilex
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Fragile X Fact's Page
Describing Fragile X Syndrome.
http://www.ich.ucl.ac.uk/cmgs/frax98.htm
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Fragile X Syndrome
Single page on recognition of the condition in young children.
http://home.coqui.net/myrna/fragile.htm
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Fragile X Syndrome - Diagnostic and Carrier Testing
A Policy Statement from the American College of Medical Genetics.
http://www.faseb.org/genetics/acmg/pol-16.htm
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Familyvillage
Links to places to talk about Fragile X.
http://www.familyvillage.wisc.edu/lib_frgx.htm
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The National Fragile X Foundation
The National Fragile X Foundation informes and educates about the Fragile X Syndrome.
http://nfxf.org/
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FRAXA Research Foundation Home Page
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping
Fragile X Family's.
http://www.fraxa.org/
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Fragile X Association of Southern California
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental
impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in
259 females are carries of the premutation.
http://www.fraxsocal.org
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