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Directory > Health > Conditions and Diseases > Genetic Disorders > Organizations

Web Sitesi

American Society of Genetic Disorders
Informs health professionals, legislators, health policy makers, and the general public about all
aspects of human genetics.

Reviews Rating: Not yet Rated Whois Check

Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
Provides patients, families, and doctors with educational information and fosters an exchange of
information about the diagnosis and treatment of HHT between patients, physicians, researchers,
genetic counselors, agencies, educators, and the general public.

Reviews Rating: Not yet Rated Whois Check

Australian MPS & Related Diseases Society
Informs and support those affected, directly or indirectly by an mucopolysaccharide or related
disease. Offers information regarding each disease, a discussion forum, a picture gallery and news
of events.

Reviews Rating: Not yet Rated Whois Check

Genetic Information and Patient Services, Inc (GAPS)
Links to online definitions, information sites, and support groups for genetic disorders and birth

Reviews Rating: Not yet Rated Whois Check

Hereditary Disease Foundation
Information about this non profit organization, news, newsletters, recommended reading and contact

Reviews Rating: Not yet Rated Whois Check

Genetic Interest Group
Information about this UK umbrella group of organizations working together to improve services for
people with genetic disorders. A notice board, education, services and links are provided.

Reviews Rating: Not yet Rated Whois Check

Lysosomal Diseases New Zealand
Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of
rare genetic diseases.

Reviews Rating: Not yet Rated Whois Check


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