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Sanfilippo Syndrome
Directory > Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome

Web Sitesi

NORD: Sanfilippo Syndrome
Offers a list of synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sanfilippo%20Syndrome
Reviews Rating: Not yet Rated Whois Check

Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative
genetic disorder that is usually fatal before the teens. Raising awareness of the condition and
enlisting financial support.
http://www.helpachild.net
Reviews Rating: Not yet Rated Whois Check

Children's Medical Research Foundation
A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo
Syndrome.
http://www.curekirby.org
Reviews Rating: Not yet Rated Whois Check

MPS III: Sanfilippo Syndrome
Information, including the causes, different forms, the inheritance and how the disorder
progresses.
http://www.mpssociety.org/mps3.html
Reviews Rating: Not yet Rated Whois Check

Pediatric Database
Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and
management.
http://www.icondata.com/health/pedbase/files/SANFILIP.HTM
Reviews Rating: Not yet Rated Whois Check

Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising
funds to support research aimed at finding a cure. Includes a newsletter.
http://www.bensdream.org
Reviews Rating: Not yet Rated Whois Check

 


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