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Shwachman Syndrome
Directory > Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome

Web Sitesi

NORD: Shwachman Syndrome
Offers a general discussion, the synonyms and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome
Reviews Rating: Not yet Rated Whois Check

Shwachman-Diamond Syndrome Family/Friends
An email list for families, friends, parents and individuals affected by Shwachman-Diamond
Syndrome.
http://groups.yahoo.com/group/shwachmansyndrome/
Reviews Rating: Not yet Rated Whois Check

Shwachman-Diamond America
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and
also supports research.
http://shwachmandiamondamerica.org
Reviews Rating: Not yet Rated Whois Check

Shwachman-Diamond Syndrome International
Support organization helping the victims of this disease. Provides a network for families to
receive information, advocacy, and emotional support, and keep abreast of the most current medical
information available.
http://www.shwachman-diamond.org/
Reviews Rating: Not yet Rated Whois Check

Pediatric Database
A definition of Shwachman-Diamond syndrome, the epidemiology, pathogenesis, clinical features,
investigations and management.
http://www.icondata.com/health/pedbase/files/SHWACHMA.HTM
Reviews Rating: Not yet Rated Whois Check

Shwachman Syndrome
A mothers story to diagnose this disorder before a team of doctors could.
http://www.chariot.net.au/~dna/angelica.html
Reviews Rating: Not yet Rated Whois Check

The CaF Directory
A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support
group in the United Kingdom.
http://www.cafamily.org.uk/Direct/s24.html
Reviews Rating: Not yet Rated Whois Check

 


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