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Search Results

Understanding Xeroderma Pigmentosum
Online booklet providing a general overview and description of the disorder and answers to
frequently asked questions. Produced by the US National Institues of Health. [PDF Format]
http://www.cc.nih.gov/ccc/patient_education/pepubs/xeroderma.pdf
Reviews Rating: Not yet Rated Whois Check

Online Mendelian Inheritance in Man - Xeroderma Pigmentosum
Includes summaries of genetic research results and citations.
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=278700
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National Organization of Rare Disorders - Xeroderma Pigmentosum
Offers alternative names, a general discussion and resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Xeroderma%20Pigmentosum
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Xeroderma Pigmentosum
An article about this disorder in English and Italian along with some images.
http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html
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Pediatric Database
A definition of xeroderma pigmentosum with the epidemiology, pathogenesis, clinical features,
investigation and management.
http://www.icondata.com/health/pedbase/files/XERODERM.HTM
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XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma
pigmentosum and other photosensitive conditions.
http://www.xpsupportgroup.org.uk
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Children of the Moon
A portal site that provides an online community for children, teens and adults with xeroderma
pigmentosum.
http://www.moonchildren.com
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Xeroderma Pigmentosum Society
Resource for information about the disease and about the not-for-profit support organization
devoted to supporting patients and families and promoting research. Links, contact information, XP
Society news about fund raising events and the unique Camp Sundown program.
http://www.xps.org
Reviews Rating: Not yet Rated Whois Check

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