| Directory > Health > Conditions and Diseases > Immune Disorders > Auto-Immune > Myositis Juvenile Dermatomyositis Registry
The registry is part of a study to determine prevalence, incidence, and circumstances surrounding
the onset of JDMS, and to facilitate JDMS research by physicians and scientists.
http://www.childrensmemorial.org/depts/immunology/referrals.asp
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Dermatomyositis
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/dermato_doc.htm
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Polymyositis
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/polymyos_doc.htm
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Stan's Polymyositis Site
Providing detailed, up-to-date information on diagnosis, treatment, therapy, and a diary.
http://home.att.net/~stanford.white/
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MDA Dermatomyositis page
Background and references, provided by the Muscular Dystrophy Association.
http://www.mdausa.org/disease/pmdm-d.html
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Healthubs
A brief definition of polymyositis, followed by links to overviews, full text articles and support
groups.
http://www.healthubs.com/polymyositis
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Myositis NW
Information, resources, & events relating to Myositis diseases, plus the author's personal
site.
http://www.myositisNW.org/
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Julia's Juvenile Dermatomyositis (JDMS) Diary
How one family is dealing with this rare auto-immune disease that affects the muscles and skin.
http://www.ralphb.net/JDMS/
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All About Shelby: A JDMS Journal
Created to help monitor Shelby's symptoms, progress, and general well being. Listing of her
treatments, medications, andlab results. Description of Juvenile Dermatomyositis.
http://www.saraspace.com/shelby
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Jordan's Juvenile Dermatomyositis Diary
The diary of a 10 year old girl diagnosed with this rare disease including her treatment and
progress.
http://www.geocities.com/EnchantedForest/Meadow/6709/
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Myositis Association of America (MAA)
A non-profit organization committed to helping people with inflammatory myopathies through a
variety of information and support services.
http://www.myositis.org/
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