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Search Results

NORD: Ehlers-Danlos Syndrome
EDS disease information from the National Organization for Rare Disorders.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome
Reviews Rating: Not yet Rated Whois Check

Ehlers-Danlos National Foundation - Michiana Branch
Support group for individuals and families from Michigan and Indiana who have the condition.
Meetings are held in South Bend, Indiana. Includes schedule and maps.
http://michianaednf.org
Reviews Rating: Not yet Rated Whois Check

EDS Today
The newsletter for, by, and about people with the condition. Includes featured articles, columns,
and contact information for support groups worldwide.
http://www.edstoday.org/
Reviews Rating: Not yet Rated Whois Check

Ehlers-Danlos Syndrome Information
A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman,
Department of Orthopaedics, University of Washington, Seattle, USA.
http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01
Reviews Rating: Not yet Rated Whois Check

New York / New Jersey Ehlers-Danlos and Hypermobility
Details about this support, message and discussion center. Includes a search feature and posting a
message.
http://disc.server.com/Indices/163893.html
Reviews Rating: Not yet Rated Whois Check

Ehlers Danlos Foundation of New Zealand
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides
some information for the medical profession and general public.
http://www.edfnz.org.nz
Reviews Rating: Not yet Rated Whois Check

Ehlers-Danlos Syndrome Support Group
This site offers extensive information for patients and doctors, plus links.
http://www.ehlers-danlos.org
Reviews Rating: Not yet Rated Whois Check

Ehlers-Danlos Hope
Personal plea for help from a sufferer in Syria.
http://ehler.8m.com
Reviews Rating: Not yet Rated Whois Check

Damaged - A Journal
The personal diary of a young woman learning to live with Ehlers Danlos Syndrome.
http://www.pixeldiva.co.uk/journal
Reviews Rating: Not yet Rated Whois Check

Arlene Brandeis' Intuitive Art
An expression of the loss of family members to genetic anomalies including Ehlers-Danlos Syndrome,
Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each.
http://www.arlenebrandeis.com
Reviews Rating: Not yet Rated Whois Check

Canadian Ehlers-Danlos Association
Working together to provide assistance, support and resources for people living with this rare
genetic disorder.
http://www.ceda.ca/
Reviews Rating: Not yet Rated Whois Check

Ehlers-Danlos National Foundation
Provides support and information to those affected by Ehlers-Danlos syndrome and their families.
http://www.ednf.org/
Reviews Rating: Not yet Rated Whois Check

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