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Directory > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Lupus > Personal Pages

Web Sitesi

Ritter-Bright, Dionne
After 16 years with SLE she needs a transplant.
http://dionnesstory.tripod.com
Reviews Rating: Not yet Rated Whois Check

But You Don't Look Sick?
Includes personal stories, product reviews, links.
http://www.butyoudontlooksick.com
Reviews Rating: Not yet Rated Whois Check

A Fight For A Cure
A personal story about life with lupus.
http://www.lupie.com
Reviews Rating: Not yet Rated Whois Check

Lupus Family Circle
Information about Lupus, news updates, forums for sharing personal experiences, a support group and
resource links.

http://www.geocities.com/moonotter2/lupus.html
Reviews Rating: Not yet Rated Whois Check

Women's Info Page
Both general and personal disease information, and how to get free medications.
http://www.angelfire.com/mo/nut2oak/
Reviews Rating: Not yet Rated Whois Check

Lupus Patients Understanding and Support
Maintained by consultant rheumatologist and featuring information and support for patients and
those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome.

http://www.lupus-support.org.uk/
Reviews Rating: Not yet Rated Whois Check

Lupus Living & Fibromyalgia
Patient and RN present facts and support group for living with the disease.
http://www.medakate.org/lupus.html
Reviews Rating: Not yet Rated Whois Check

Lupus Information Center
Health through knowledge and power: information, statistics, little known facts, common
misconceptions, and more than 60 personal stories.

http://www.geocities.com/HotSprings/Spa/9534
Reviews Rating: Not yet Rated Whois Check

Michelle Soignée
Includes photo of discoid rash, causes, and treatment courses.
http://www.capederm.com/info_discoid_lupus_erythematosus.htm
Reviews Rating: Not yet Rated Whois Check

The Lupus Site
Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages
of information.

http://www.uklupus.co.uk/
Reviews Rating: Not yet Rated Whois Check

Snapshots of Lupus
A collection of photos and biographies of patients; plus online awareness activities.
http://www.geocities.com/snapshotsoflupus
Reviews Rating: Not yet Rated Whois Check

The Lupie Bin
Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and
family are welcome.

http://members.aol.com/lupiebin/index.htm
Reviews Rating: Not yet Rated Whois Check

Living with Lupus
Directory and support for people living with this, and other autoimmune conditions, as well as
their family and friends.

http://cookiebytes.8k.com/LivingWithLupus.html
Reviews Rating: Not yet Rated Whois Check

Wendy's Pages
A web site with Lupus and Fibromyalgia information, links, and personal stories.
http://www.wendys-web.com/lupus.htm
Reviews Rating: Not yet Rated Whois Check

KC Dockal alt.support.lupus FAQ
Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and
procedures, and filing for disability in the US and UK. Also includes information on the usernet
alt.support.lupus.

http://www.ghg.net/schwerpt/aslfaq30.htm
Reviews Rating: Not yet Rated Whois Check

Miller, Cyndee
General information, personal experiences, a 30 year Lupus patient, with extensive links.
http://www.public.asu.edu/~cyndee74/
Reviews Rating: Not yet Rated Whois Check

Lupus and Art
Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well
as information about symptoms, treatments, and coping.

http://www.painterjayne.com/personalpageaboutmylupus.html
Reviews Rating: Not yet Rated Whois Check

Sarah's Lupus Webpage
Directory of pamphlets, articles, and personal stories to learn more about the disease, coping
mechanisms, and support.

http://www.geocities.com/sarahmcraig
Reviews Rating: Not yet Rated Whois Check

Terri's Angels of Hope
Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and
message boards for fellow sufferers including lupus, COPD, and congestive heart failure.

http://www.geocities.com/angelterri2002/
Reviews Rating: Not yet Rated Whois Check

I Fell Down: A Story of Lupus
The author tells about her life with this disease. Find support, links, chat and prayer.
http://www.angelfire.com/home/lupie
Reviews Rating: Not yet Rated Whois Check

Follow My Lupus
Follow Brett Borowski from initial diagnosis in 1994 to the present, including treatment with
Cytoxan. It includes a narrative account, lab results, medications, and other resources.

http://borowski.net/FollowMyLupus
Reviews Rating: Not yet Rated Whois Check

Loonie's Lupus Page
Outlines different types of the disease, directory of support and informational sites, and share a
personal experience.

http://www.geocities.com/thelooniegirl
Reviews Rating: Not yet Rated Whois Check

Monicas Lupus Story
A Story of a systemic disease sufferer in the UK, with additional informational directory.
http://www.monicaslupus.co.uk
Reviews Rating: Not yet Rated Whois Check

 


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