| Directory > Health > Conditions and Diseases > Neurological Disorders > Demyelinating Diseases > Leukodystrophy Dylan Samuel Freeman
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his
progress, and photographs.
http://www.dylanfreeman.20m.com
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Leukodystrophy Hub
A brief definition followed by links to research articles, overviews and case reports.
http://www.projectlinks.org/leukodystrophy
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Family Village / Library / Leukodystrophy
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease,
Metachromatic Leukodystrophy, and Refsum's Disease.
http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
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Undiagnosed Leukodystrophy
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological
condition thought to be genetic.
http://members.tripod.com/phillipslauren
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Leukodystrophy
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and
Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
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MCW HealthLink - Alexander Disease
Information sheet from the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/921383447.html
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Devoted to Brianna
Medical experiences and terminology helpful for parents to understand and cope with genetic
disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many.
http://hometown.aol.com/ydb739094/brianna.html
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Alexander Disease
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
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Aicardi-Goutieres Syndrome
News, descriptions, contacts, and other information concerning this leukodystrophy.
http://www.aicardi-goutieres.com
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Leukodystrophy
CHORUS document on the different types of Leukodystrophy. A little technical.
http://chorus.rad.mcw.edu/doc/00231.html
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United Leukodystrophy Foundation
Nonprofit, voluntary health organization dedicated to providing patients and their families with
information about their disease and assistance in their health.
http://www.ulf.org/
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Call Again Soon
Directed at making life better for people affected by Leukodystrophy and those who know and love
them.
http://www.joejohnson.net/
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