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Search Results

Web Sitesi

Dylan Samuel Freeman
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his
progress, and photographs.
http://www.dylanfreeman.20m.com
Reviews Rating: Not yet Rated Whois Check

Leukodystrophy Hub
A brief definition followed by links to research articles, overviews and case reports.
http://www.projectlinks.org/leukodystrophy
Reviews Rating: Not yet Rated Whois Check

Family Village / Library / Leukodystrophy
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease,
Metachromatic Leukodystrophy, and Refsum's Disease.
http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
Reviews Rating: Not yet Rated Whois Check

Undiagnosed Leukodystrophy
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological
condition thought to be genetic.
http://members.tripod.com/phillipslauren
Reviews Rating: Not yet Rated Whois Check

Leukodystrophy
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and
Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
Reviews Rating: Not yet Rated Whois Check

MCW HealthLink - Alexander Disease
Information sheet from the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/921383447.html
Reviews Rating: Not yet Rated Whois Check

Devoted to Brianna
Medical experiences and terminology helpful for parents to understand and cope with genetic
disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many.
http://hometown.aol.com/ydb739094/brianna.html
Reviews Rating: Not yet Rated Whois Check

Alexander Disease
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
Reviews Rating: Not yet Rated Whois Check

Aicardi-Goutieres Syndrome
News, descriptions, contacts, and other information concerning this leukodystrophy.
http://www.aicardi-goutieres.com
Reviews Rating: Not yet Rated Whois Check

Leukodystrophy
CHORUS document on the different types of Leukodystrophy. A little technical.
http://chorus.rad.mcw.edu/doc/00231.html
Reviews Rating: Not yet Rated Whois Check

United Leukodystrophy Foundation
Nonprofit, voluntary health organization dedicated to providing patients and their families with
information about their disease and assistance in their health.
http://www.ulf.org/
Reviews Rating: Not yet Rated Whois Check

Call Again Soon
Directed at making life better for people affected by Leukodystrophy and those who know and love
them.
http://www.joejohnson.net/
Reviews Rating: Not yet Rated Whois Check

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