| Directory > Health > Conditions and Diseases > Neurological Disorders > Epilepsy > Organizations The Fund for Epilepsy
Intents to raise public and political awareness of epilepsy, to promote knowledge and understanding
and to dispel stigma based on ignorance and fear.
http://www.epilepsyfund.org.uk
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Florida Epilepsy Services Providers Association
The not-for-profit membership organization of epilepsy service providers aims to improve the
quality of life for citizens affected by epilepsy.
http://www.floridaepilepsy.org/
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Epilepsy Care Group Singapore
Volunteer-based organization addressing the needs of persons with epilepsy and their care-givers in
Singapore.
http://www.epilepsycare.org
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Epilepsy Association Australia
Organization dedicated to educate, inform and assist people with epilepsy, their families and those
who work with them.
http://www.epilepsy.org.au
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f.a.c.e.s - fight against childhood epilepsy at NYU Medical Center
A not-for-profit organization that supports pediatric epilepsy research and programs for children
with epilepsy.
http://www.nyufaces.org
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NYU Comprehensive Epilepsy Center
Offers evaluation, treatment, and access to the most up-to-date research for children, adolescents,
and adults with all forms of epilepsy.
http://www.nyuepilepsy.org
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Anchorage Area Epilepsy Society
A non-profit, voluntary organization providing information about epilepsy, treatment and
supportive services.
http://hometown.aol.com/epiinfo5/index.html
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Epilepsy Association of Central Florida
Not-for-profit community based organization provides information and resources for adolescents and
children with epilepsy, as well as support for family members.
http://www.epilepsyassociation.org
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HowdyDave-Epilepsy
The private web page offers information about the vagus nerve stimulation and contains a large link
list.
http://www.howdydave.com/epilepsy1.html
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Indian Epilepsy Association
Informs about the activities of the association and provides general information about epilepsy.
http://www.indianepilepsyassociation.org/
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Manitoba Epilepsy Association Inc.
Provides peer counseling and information services to people with epilepsy and the parents of
children with epilepsy.
http://www.manitobaepilepsy.org/
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Walking for epilepsy
This site chronicles the journey of Karla Brown as she walks 9000 miles across America to raise
people's awareness of epilepsy.
http://w1.461.telia.com/~u46118963/news/karlabrown.html
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Epilepsy Foundation of the Chesapeake Region
EFCR has worked to improve the quality of life for individuals with seizure disorders through
hands-on, individualized services. People of all ages look to EFCR for guidance and assistance in
leading fuller, more independent lives. EFCR serves the Maryland, Washington D.C, and Northern
Virginia communities.
http://www.epilepsy-foundation.org/
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Brainstorm Bear
A traveling epilepsy awareness bear visits families around the world. His travels are intended to
localize and personalize the story of children and adults with Epilepsy. One can request a visit at
this site.
http://pages.ivillage.com/brainstormbear/
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Charlie Foundation
The Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a
treatment for childhood epilepsy. The Foundation's role is to facilitate investigation, educate
professionals, and inform families about the current status of the ketogenic diet.
http://www.charliefoundation.org
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Canadian Epilepsy Alliance
Features national epilepsy news and priorities, profiles of everyday Canadians living with
seizures, and links to grassroots service organizations for people with epilepsy and their families
from coast-to-coast.
http://www.epilepsymatters.com/English/index.html
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Chrissy & Friends
The organization offers children with epilepsy a variety of activities and provides support groups
for parents of children with epilepsy and for young adults.
http://www.chrissyandfriends.org
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Epilepsy Queensland
Gives information about the organization, offers a discussion forum and a chat session.
http://www.eqi.org.au/
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Victoria Epilepsy and Parkinson's Centre
Provides information about the organization and basic information about epilepsies.
http://www.vepc.bc.ca/
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Epilepsy Foundation of Victoria
Provides extensive information about epilepsy and offers several discussion groups.
http://www.epinet.org.au/
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Epilepsy Prince Edward Island
Provides information about the organization.
http://www.isn.net/epilepsy/
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Epilepsy Ontario
Information about epilepsy and especially about drug therapy.
http://www.epilepsyontario.org/
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Epilepsy Newfoundland and Labrador
Contains details about the association and provides basic information about epilepsy.
http://www.nfld.net/epilepsy/
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Epilepsy Association of Calgary
A charitable, social Service agency established to address community, individual, and family needs
related to epilepsy.
http://www.epilepsycalgary.com/
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Epilepsy NSW
Provide advice and guidance, education, research and support services in association with allied
medical and community agencies.
http://www.auscharity.org/epilnsw.htm
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Edmonton Epilepsy Association
Provides basic information about epilepsy to individuals with epilepsy, their families, and the
public.
http://www.ecn.ab.ca/epilepsy/home.htm
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BC Epilepsy Society
A non-profit organization dedicated to improving the lives of people living with epilepsy. Provides
also books, videos pamphlets, magazines and other teaching materials.
http://BCEPILEPSY.COM
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Epilepsy Museum Kork
First museum for epilepsy and its history: Causes, diagnosis, therapy, epilepsy in the literature,
epilepsy and arts, famous people who suffered from this disease.
http://www.epilepsiemuseum.de/english/
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Kuekids Australia
Provides information, links and support for parents of children with uncontrolled epilepsy.
Includes ketogenic diet and food intolerance.
http://home.iprimus.com.au/kuekids/home/
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Epilepsy Action Scotland
Provides general information about epilepsy. Campaigns for more epilepsy services across Scotland
and offers addresses of branches and support.
http://www.epilepsyscotland.org.uk/
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Epilepsy New Zealand
Works to promote the welfare and interests of people, and their family, with epilepsy and to
increase public awareness. Provides general information, current news and discussion forums.
http://www.epilepsy.org.nz/
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The National Society for Epilepsy (NSE)
British organization aiming to improve medical treatment, to provide information and to raise
awareness about epilepsy among people affected by this disease and among the general public.
http://www.epilepsynse.org.uk/pages/index/home/
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International League Against Epilepsy (ILAE)
International organization founded in 1909 to advance and disseminate knowledge about epilepsy, to
promote research, education and training and to improve services and care for patients.
http://www.ilae-epilepsy.org/
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Dutch Epilepsy Care Foundation
In-patient clinics are located in Heemstede, Cruquius, and Zwolle.
http://www.sein.nl/defaultEng.asp
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International Bureau for Epilepsy
Interested in the non-medical aspects, addressing such social problems as education, employment,
insurance, driving license restrictions and public awareness. Includes activities, publications and
links.
http://www.ibe-epilepsy.org
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Epilepsy Canada
National non-profit organization featuring news, information and resources on epilepsy.
http://www.epilepsy.ca/eng/mainSet.html
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European Epilepsy Academy (EUREPA)
Being part of the European structure of the International League Against Epilepsy (ILAE), EUREPA
initiates and co-ordinates concerted research on matters relating to epilepsy throughout Europe.
http://www.eurepa.de/
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The Epilepsy Institute
Information about the organization as well a resource for patients, their families and the
community.
http://www.epilepsyinstitute.org
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South African National League against Epilepsy
SANEL is a non-government organization dedicated to working with people with epilepsy and their
families, to enable them to lead meaningful and enriching lives. The site offers comprehensive
information about epilepsy and an Online Counselor.
http://www.epilepsy.org.za/
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Epilepsy Research Foundation
Promotes, supports and raises money to fund basic and clinical research into the basic causes of
epilepsy. It aims to improve the lives of those who suffer from epilepsy and thus the lives of
their families, friends and colleagues.
http://www.erf.org.uk
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F.A.B.L.E - For a Better life with Epilepsy
Organization whose mission is to promote and fund Vagus Nerve Stimulation Therapy for those with
epilepsy uncontrolled by medication alone. Offers help and support to potential patients and their
families, linking families in similar situations through a patient support network.
http://www.fable.org.uk
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Epilepsy Toronto
Provides up-to-date, comprehensive information and interactive resources for living well with this
disease.
http://www.epilepsytoronto.org
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American Epilepsy Society
Promotes research and education for professionals dedicated to the prevention, treatment and cure
of epilepsy.
http://www.aesnet.org/
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Epilepsy Action
UK-based epilepsy charity, providing information and advice for people with epilepsy. Includes
freephone and email helplines and sections for children and teenagers with the condition.
http://epilepsy.org.uk/
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Epilepsy and Youth Project
An IBE project with the objective of giving a voice to young people around the world. Offers a chat
room, contacts and information.
http://www.eyie.org
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Parents Against Childhood Epilepsy
Offers a history and mission statement, information and events, research, a message board, links,
institutes and doctors and information about the disease.
http://www.paceusa.org
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