| Directory > Health > Conditions and Diseases > Neurological Disorders > Epilepsy > Support Groups Epilepsy Community
Message boards and chat dedicated to sharing information, offering support, and coping strategies
to better manage this disease. Community moderated by volunteers.
http://community.healingwell.com/community/?f=23
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Epilepsy Support Group
Providing world wide support for people with epilepsy. Includes FAQ's, links, support groups and a
pen pal site.
http://www.geocities.com/epilepsy911
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Doose Syndrome
This is a group about doose and it has links to other websites but almost all information can be
seen by non members of the group.
http://groups.msn.com/doosesyndrome
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Lafora body disease research talk
This is a site about lafora body disease it has a message board and a links page.
http://groups.msn.com/laforabodydiseaseresearchtalk
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Chrissy & Friends
Non-Profit organization that has support groups for children and teens with epilepsy and parents of
children with epilepsy support groups in the NYC area.
http://www.chrissyandfriends.org/
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Yahoo! Groups : lennox-gsibs
Lennox Gastaut is a severe form of Epilepsy. This group is for the siblings (brothers &
sisters) of those affected by LGS, or a seizure disorder.
http://groups.yahoo.com/group/lennox-gsibs/
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Yahoo! Groups : epilepsypals
a club for anyone that has epilepsy, their parents, friends and family. to meet new friends, share
info for children to perhaps find penpals. all ages welcome.
http://groups.yahoo.com/group/epilepsypals/
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Yahoo! Groups : epilepsysupport4kids
This group is a support group for kids with epilepsy, kids interetsed in improving their condition
by natural means.
http://groups.yahoo.com/group/epilepsysupport4kids/
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Yahoo! Groups : worldofepilepsy
For people around the globe who have epilepsy and would like to share their recent or previous
experience with epilepsy.
http://groups.yahoo.com/group/worldofepilepsy/
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Yahoo! Groups : ToddlerswEpilepsy
This is a group for parents with toddlers that have Epilepsy. Parents with infants are welcome too.
http://groups.yahoo.com/group/ToddlerswEpilepsy/
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Yahoo! Groups : epilepsycircle
This support group is for all who have an interest in epilepsy, whether it is for you, a family
member, a friend, pupil or a child that has a seizure disorder or epilepsy.
http://groups.yahoo.com/group/epilepsycircle/
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Yahoo! Groups : childhoodepilepsy
This mailing list is intended to support parents and other care-givers of children diagnosed with a
form of epilepsy.
http://groups.yahoo.com/group/childhoodepilepsy/
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Yahoo! Groups : doosesyndrome
For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as
Doose Syndrome, a rare, severe, intractable epilepsy of early childhood.
http://groups.yahoo.com/group/doosesyndrome/
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Yahoo! Groups : ketogenic
This is a support group for parents, family members, and care givers who are using the Ketogenic
Diet as a means of control for epilepsy or seizure disorders.
http://groups.yahoo.com/group/ketogenic/
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Yahoo! Groups : epilepsycured
We are people sharing information on curing / preventing epilepsy - seizures. This is a support
group for patients, parents, children, familly members ... anyone and everyone.
http://groups.yahoo.com/group/epilepsycured/
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Yahoo! Groups : seizurealertdogs
This group unites people who benefit from seizure alert or assistance dogs as well as people with
epilepsy who benefit from a dog's companionship. We also Welcome people who want to learn more
about these wonderful dogs.
http://groups.yahoo.com/group/seizurealertdogs/
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Yahoo! Groups : TLE
Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and
friends/family of sufferers.
http://groups.yahoo.com/group/TLE/
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Yahoo! Groups : epilepsychat
A Place For Chat, Info, Support And To Have Fun
http://groups.yahoo.com/group/epilepsychat/
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Yahoo! Groups : wivesofmenwithepilepsy
It is the hope of this club to address problems, offer support and encouragement to the wife whose
husband has epilepsy.
http://groups.yahoo.com/group/wivesofmenwithepilepsy/
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Yahoo! Groups : ChristianEpilepsyPrayerGroup
Are you a Christian living with or caring for someone with epilepsy? ...
http://groups.yahoo.com/group/ChristianEpilepsyPrayerGroup/
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Yahoo! Groups : Dating-and-Married-Life-with-Epilepsy
The purpose of this group is for people to discuss issues that come up when they are dating and
when they are married. How do we handle different situations? Are we embarrassed? How do our
children handle it? Are people scared of us? etc....
http://groups.yahoo.com/group/Dating-and-Married-Life-with-Epilepsy/
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Yahoo! Groups : Christian-Epilepsy-Support
Christian oriented support for people with Epilepsy or family and friends of people with Epilepsy.
http://groups.yahoo.com/group/Christian-Epilepsy-Support/
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Yahoo! Groups : parents-of-kids-with-epilepsy
This Group is for Parents of Children With Epilepsy.
http://groups.yahoo.com/group/parents-of-kids-with-epilepsy/
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Yahoo! Groups : epilepsy
For people with or know someone with Epilepsy. A place to talk, share stories, and for moral
support. All ages welcome.
http://groups.yahoo.com/group/epilepsy/
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Yahoo! Groups : Teens_who_have_Epilepsy
Talk about strees depersions everything that may come along with have epilepsy.
http://groups.yahoo.com/group/Teens_who_have_Epilepsy/
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Yahoo! Groups : real_epilepsy
A group based in Indiana. Epilepsy and seizure disorder resources and support.
http://groups.yahoo.com/group/real_epilepsy/
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Yahoo! Groups : Epilepsy_Advocates
Our group is made up of people that suffer from Epilepsy, parents of children with Epilepsy, people
whom have previously had Epilepsy and friends of those suffering from Epilepsy.
http://groups.yahoo.com/group/Epilepsy_Advocates/
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Yahoo! Groups : Rare_Epilepsy_Syndromes
Rare epilepsy is very difficult on all families involved. This group has been made to help educate
and support these families. Rare epilepsy's include. ESES/CSWS, LKS, LGS, Begnign Rolandic, and any
other hard to recognize epilepsy.
http://groups.yahoo.com/group/RareEpilepsySyndromes/
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Yahoo! Groups : adultswithepilepsy
This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including
causes, treatment and coping skills.
http://groups.yahoo.com/group/adultswithepilepsy/
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Yahoo! Groups : Epilepsy_Support_And_Education
We are a growing community to help bring people with epilepsy from all corners of the world to
share experiences, thoughts, and provide information. All ages are welcome and you don't have to be
epileptic to join.
http://groups.yahoo.com/group/epilepsysupportandeducation/
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Yahoo! Groups : Epilepsy_Surgery_Group
We deal with those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife
Radiosurgery. Our members are here to help answer any questions you may have. All are welcome,
whether you are a surgery candidate or not.
http://groups.yahoo.com/group/EpilepsySurgeryGroup/
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Yahoo! Groups : Epilepsy-Kids
Epilepsy-Kids offers support and information for parents of children diagnosed with any form of
epilepsy.
http://groups.yahoo.com/group/epilepsy-kids/
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Yahoo! Groups
Yahoo! Directory: As of the entry date, there are 103 epilepsy groups on Yahoo!
http://dir.groups.yahoo.com/dir/Health___Wellness/Support/Diseases_and_Conditions/Epilepsy?
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Epilepsy Surgery Club on Yahoo!
Details about this group which is for those who have thought of (or had) having brain surgery or
Vagus Nerve Stimulator surgery. Registration required.
http://groups.yahoo.com/clubs/epilepsy_surgery
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Epilepsy Action
Local branches of national organisation providing support, advice and information on living with
epilepsy
http://beehive.thisisessex.co.uk/epilepsy
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Brain Talk Groups - Neurology Support Groups - Epilepsy
Epilepsy Support Group sponsored by Massachusetts General Hospital.
http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Epilepsy&a....
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Cymdeithas Epilepsi Ysbyty Gwynedd
Epilepsy Support Group in Wales, UK.
http://www.cymepilepsysbytygwyn.co.uk/
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Yahoo! Clubs: Epilepsy Support Group
Supportive club to help those with this disease. Includes free membership, message boards and chat
room. Also joining instructions.
http://groups.yahoo.com/clubs/epilepsysupportgroup
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Epilepsy Discussion BBS
Epilepsy discussion and support group.
http://members4.boardhost.com/Epilepsy_Talk/
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Yahoo! Groups : KuekidsAustralia
The Kuekids Australia mailing list is to help parents, families and friends of children using the
ketogenic diet who may also have food intolerance problems.
http://groups.yahoo.com/group/KuekidsAustralia/
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Epilepsy Support Group Eastwood, Sydney Australia
Offers information, events, issues, links and contact details.
http://www.users.bigpond.com/epilepsysupportgroup/Default.htm
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People Incorporated Epilepsy Services
A guided independent living experience designed to prepare adults diagnosed to live and work on
their own. Includes services, history, gallery, opportunities and FAQs.
http://www.orgsites.com/mn/epilepsy
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Epilepsy Support
Maintained by someone with the disease, this site offers support, advice, and useful links.
http://www.epilepsysupport.org.uk/
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Epilepsy Bereaved
Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP
research. Free booklet for young people with epilepsy.
http://dspace.dial.pipex.com/epilepsybereaved/
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Weston Super Mare Branch of Epilepsy Action
Provides information about coping with this disease, seizures and convulsions. Details about the
various types, and provides free help and advice through the use of its email and telephone help
lines.
http://www.wsm.inuk.com/epilepsy.htm
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Epilepsy-l: Epilepsy support group
An E-mail based support group for people with epilepsy and those who care about and for them.
http://home.ease.lsoft.com/Archives/Epilepsy-L.html
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Epilepsy Message Board
Healthboards.com message board for information and support on epilepsy.
http://www.healthboards.com/epilepsy/
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