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Directory > Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Muscular Dystrophies > Organizations

Web Sitesi

Muscular Dystrophy Family Foundation
Nonprofit foundation that provides adaptive equipment and emotional support to individuals and
families affected by any one of 40 neuromuscular diseases.

http://www.mdff.org/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Association of Slovenia
Muscular Dystrophy Association of Slovenia
http://www.drustvo-distrofikov.si/
Reviews Rating: Not yet Rated Whois Check

Parent Project Muscular Dystrophy in Nepal
Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by
providing practical, medical and emotional support to the people and families affected by the
condition.

http://www.parentprojectmd.org.np/
Reviews Rating: Not yet Rated Whois Check

European Alliance of Neuromuscular Disorders Associations
European organization which connects national neuromuscular disease organizations throughout the
continent.

http://www.eamda.com/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Association of New Zealand
Organization dedicated to serving people with muscular dystrophy and other neuromuscular diseases
who live in New Zealand.

http://www.mda.org.nz/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Association (South Australia)
The Muscular Dystrophy Association of South Australia provides a range of individually designed
support services for all persons with muscular dystrophy and neuromuscular disorders, their
families and their carer/support provider, including therapy, information, equipment loan and
counselling.

http://www.mdasa.org.au/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Campaign Northern Ireland
Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles,
information about the Regional Muscle Clinic and a web directory.

http://www.mdcni.org.uk/
Reviews Rating: Not yet Rated Whois Check

Focus On the Cure Foundation
Focus On the Cure Foundation raises funds that go directly toward supporting research for a cure of
Duchenne Muscular Dystrophy.

http://adkconnection.com/FOTC/
Reviews Rating: Not yet Rated Whois Check

Society for Muscular Dystrophy Information International
Features organization background, disease information, newsletters, membership information,
resources, and contact details.

http://users.auracom.com/smdi/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Association Singapore
Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the
lives of people with Muscular Dystrophy.

http://www.mdas.org.sg
Reviews Rating: Not yet Rated Whois Check

Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of
children with Duchenne and Becker Muscular Dystrophy.

http://www.parentprojectmd.org
Reviews Rating: Not yet Rated Whois Check

Parent Project UK
Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker
Muscular Dystrophy that promotes research to find a cure or viable treatments.

http://www.ppuk.org
Reviews Rating: Not yet Rated Whois Check

The Muscular Dystrophy Campaign (UK)
A UK-based charity which funds medical research and support services for people with neuromuscular
conditions. Site contains detailed information about duchenne, becker and many other conditions.
Sections on education, care, physiotherapy, research and ways to help raise funds.

http://www.muscular-dystrophy.org/
Reviews Rating: Not yet Rated Whois Check

Logan Paige Foundation for Myotonic Dystrophy
Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information
about fundraising, both for research and to assist people who cannot afford testing, news, stories,
and about Logan Paige.

http://www.loganpaige.org/
Reviews Rating: Not yet Rated Whois Check

Facioscapulohumeral Muscular Dystrophy Society
The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD).
http://www.fshsociety.org
Reviews Rating: Not yet Rated Whois Check

Cell Therapy Research Foundation
Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and
other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.

http://www.celltherapy.com/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Ireland
Voluntary organization in Ireland which provides support for people with muscular dystrophy and
their families.

http://www.mdi.ie/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Association (USA)
Voluntary health agency providing information and supporting research into neuromuscular diseases,
including Muscular Dystrophy. The MDA site contains information about many forms of muscular
dystrophy, including lists of ongoing clinical trials, an "Ask the Experts" feature, and
research updates.

http://www.mdausa.org/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Canada
National voluntary agency committed to eliminating neuromuscular disorders.
http://www.mdac.ca/
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Association (Australia)
Extensive information on the range of disorders, research information and many links to onsite
publications. Also provides an international support network with a chat service dedicated for use
by the worldwide Muscular Dystrophy community.

http://www.mda.org.au/
Reviews Rating: Not yet Rated Whois Check

 


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