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Directory > Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Muscular Dystrophies > Personal Pages

Web Sitesi

Whose world is Sadbatu?
Digital art (2D and 3D) by Georg Niedermeier who suffers Duchenne muscular dystrophy.
http://www.sadbatu.de
Reviews Rating: Not yet Rated Whois Check

Melissa's Page on Spinal Muscular Atrophy
Personal web page about Spinal Muscular Atrophy. Describes growing up with the disease and current
events in Melissa's life.

http://www.geocities.com/sma4mel/
Reviews Rating: Not yet Rated Whois Check

Mark's Hairy Page
Living with Duchenne Muscular Dystrophy. Information about his hobbies, thoughts and interests.
Minnesota.

http://www.markwolfman.lunarpages.com/hairypage/
Reviews Rating: Not yet Rated Whois Check

Living with Duchenne Muscular Dystrophy
Stacy Spence, a gentleman from New Zealand, describes his life with Duchenne Muscular Dystrophy.
http://www.geocities.com/livingwithdmd/
Reviews Rating: Not yet Rated Whois Check

Haynes Family DMD Info
The Haynes family talks about their son's Duchenne Muscular Dystrophy and provides information and
links on resources, current research and help. South Carolina.

http://www.geocities.com/haynesra/
Reviews Rating: Not yet Rated Whois Check

About Muscular Dystrophy
Personal page with muscular dystrophy links and other personal content by individual with a type of
muscular dystrophy called Friedreich's Ataxia.

http://www.downrivermall.com/About_Muscular_Dystrophy.html
Reviews Rating: Not yet Rated Whois Check

Zach's SMA Page
This is a page about the author's 3 year old son Zachary who has SMA.
http://hometown.aol.com/eyeloyou/myhomepage/brag.html
Reviews Rating: Not yet Rated Whois Check

JeffSpace: The Webpage
About Jeff McAllister, who has Duchenne Muscular Dystrophy. All about his friends, family,
interests, disability and life.

http://www.geocities.com/wolfgang_nj/
Reviews Rating: Not yet Rated Whois Check

Wide World of Muscular Dystrophy
This site is a collection of information about all types of muscular dystrophy. It includes
research updates, resource links, personal stories and fundraisers.

http://www.wtv-zone.com/mdaww/indexzep1.html
Reviews Rating: Not yet Rated Whois Check

Irina's Cozy Corner and SMA Page
Personal web page of a Russian woman living with Spinal Muscular Atrophy. Includes information on
travel, recipes and psychology. English, Russian and Italian versions.

http://www.cozy-corner.com/
Reviews Rating: Not yet Rated Whois Check

Mark Reich's Duchenne Muscular Dystrophy Site
Mark Reich has DMD and is a resident of Massachussets. He is vice-chair of his local conservation
commission and is an avid gardener.

http://www.markreich.com
Reviews Rating: Not yet Rated Whois Check

Walk Of Life
Biography of Chris Barratt, a teenager with Duchenne Muscular Dystrophy
http://members.aol.com/walkcontact/
Reviews Rating: Not yet Rated Whois Check

Justin's Locker Room
A site by, for, and about Justin Sokolowski, a young man with Werdnig Hoffman's disease or a form
of SMA. Lots of pictures of friends and family (including his cats), plus pictures of Justin with
many pro and semi-pro athletes he's met. Guestbook. Virginia.

http://www.justinsokolowski.net
Reviews Rating: Not yet Rated Whois Check

Jeff Grey
Jeff's experiences with Duchenne Muscular Dystrophy, especially medical and equipment issues
including non-invasive ventilators.

http://members.tripod.com/~Nivusers/Infob/Myinfo.html
Reviews Rating: Not yet Rated Whois Check

Living with Muscular Dystrophy.
Information about MD, Thom's personal experience with Congenital Myopathy, chat room, message board
and links.

http://www.geocities.com/SiliconValley/Lakes/1992/md.html
Reviews Rating: Not yet Rated Whois Check

Suzanne's DMD/Autism Page
Coping with Duchenne Muscular Dystrophy and Autism, from diagnosis at birth through third grade.
http://members.tripod.com/~SuziF/
Reviews Rating: Not yet Rated Whois Check

Mastery of Life
The personal story of Allan H. Macurdy who by taking control of his own health care decisions, made
a major step in learning to live with muscular dystrophy.

http://www.mdausa.org/publications/Quest/q61mastery.html
Reviews Rating: Not yet Rated Whois Check

Tony Montesanto's Home Page
A site about a boy with Duchenne Muscular Dystrophy. For anyone interested in understanding
disabilities.

http://www.nutopia.com/tony/
Reviews Rating: Not yet Rated Whois Check

Angels Among Us
Inspirational and informational site by a woman with FSH Muscular Dystrophy. Family page with
pictures of her children, and MD page of what it was like to grow up 'different'. Guestbook.
Florida.

http://www.angelfire.com/fl2/sindyfl/
Reviews Rating: Not yet Rated Whois Check

Ryan's Cafe
A young man with Duchenne Muscular Dystrophy who's interested in the internet, reading, music,
coffee and his own web design business. A fan of James Bond, he's created a filmography database
for the movies. Chat room. Australia.

http://www.mda.org.au/cafe/
Reviews Rating: Not yet Rated Whois Check

FacioScapuloHumeral Muscular Dystrophy
Information about FSHD, plus extensive links for organizations, products and services to copy with
disabilities.

http://www.mysuccess.net/fsh.html
Reviews Rating: Not yet Rated Whois Check

Kevin M. Rudolph's Exciting Site
Kevin, who has Duchenne Muscular Dystrophy, attends the University of Louisville and has a web
business as well. Interests, hobbies and accomplishments plus lots of MD links. Kentucky.

http://www.turbokev.com
Reviews Rating: Not yet Rated Whois Check

 


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