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Pierre Robin Syndrome
Directory > Health > Conditions and Diseases > Rare Disorders > Pierre Robin Syndrome

Web Sitesi

NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report]
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
Reviews Rating: Not yet Rated Whois Check

Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
http://www.pierrerobin.com
Reviews Rating: Not yet Rated Whois Check

Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes.
http://www.cafamily.org.uk/Direct/p24.html
Reviews Rating: Not yet Rated Whois Check

Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also
offers an email group, message board, and personal accounts.
http://www.pierrerobin.org
Reviews Rating: Not yet Rated Whois Check

 


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