| Directory > Health > Support Groups > Conditions and Diseases > Facial Differences Foundation for Faces of Children
Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org
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Crouzon's Bridge of Hope Foundation
Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
http://www.crouzonsbridge.org
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Beneath the Surface
Offers support and understanding to individuals of facial difference.
http://beneaththesurfaceweb.com
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John Hopkins Center for Craniofacial Development and Disorders
Provides information on research, education and clinical care for researchers and physicians. An
educational interactive resource for families. Details activies at the Center.
http://www.hopkinsmedicine.org/craniofacial/
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Let's Face It USA
A nonprofit network for people with facial difference, their families, friends and professionals.
Links professionals, patients, parents and communities to each other and to networks, books and
articles.
http://www.faceit.org/
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Children's Craniofacial Association
Dedicated to improving the quality of life for facially disfigured children and their families;
addresses the medical, financial, psychosocial, emotional, and educational concerns relating to
craniofacial conditions.
http://www.ccakids.com
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XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma
pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk
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Cancer Of The Eye Linkline (CELL)
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma.
Support, information and links.
http://pages.zoom.co.uk/cell/index.htm
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The New Face Foundation
A non-profit corporation that treats children born with facial and craniofacial deformities such as
cleft lip and cleft palate.
http://www.newfacefoundation.com
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Birthmark Support Group
From the UK-based group, giving information about birthmarks, the process of getting help,
treatment centres, newsletters, diaries of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/
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Let's Face It UK
Friendship and support for people who have a facial difference.
http://www.letsfaceit.force9.co.uk
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The DRM WebWatcher: Facial Differences
A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FACE.html
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The Craniofacial Society of Great Britain and Ireland
Information about the society, which is a multidisciplinary forum for specialists.
http://www.cfsgb.org.uk/
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University of Florida Craniofacial Center
Serves patients with craniofacial malformations and their families, conducting research, and
educating students and professionals in the discipline of craniofacial science and related
healthcare.
http://www.ufcleft.com/mission/index.html
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The Craniofacial Foundation of Arizona
Provides information and support for people with head and face disfigurement. Happy Faces Family
Network is a non-medical organization of volunteers, aiming to raise public awareness of
craniofacial problems, promoting community acceptance and understanding.
http://www.azcranio.com/support.html
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Support Works Online
Resources to find or form support groups related to facial difference. Information on medical
research.
http://www.supportworks.org/cat806.htm
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Changing Faces
UK-based charity giving support and information to people with facial disfigurement and other
facial differences and their families, and the professionals who work with them.
http://www.changingfaces.co.uk
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AboutFace
International organization providing information and emotional support to individuals and their
families affected by facial differences and disfigurements.
http://www.Aboutfaceinternational.org
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Sincere Meditations
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source
of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm
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The Journey to Sara's Smile
Canadian surgeon Dr Ronald Zuker performed nerve graft surgery to remedy Sara's left-sided facial
paralysis.
http://sarasmiles.com
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Moebius Syndrome
Moebius Syndrome support, information and resource site.
http://www.moebius1.org
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Crouzon Support Network
A network designed to offer support to individuals and families dealing with Crouzon's Syndrome and
other craniofacial anomalies.
http://www.crouzon.org
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FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific
craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org
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Disfigurement Guidance Centre
Support and information for people with facial and other disfigurements via post or telephone.
Details of International Skin Laser Directory and booklets. Based in Scotland.
http://www.dgc.org.uk/
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Acne Support Group
Information and support on acne, including top ten tips, beauty tips and problems.
http://www.stopspots.org/
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The Personal Side of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html
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