| Directory > Reference > Education > Special Education > Organizations Learning Disablities Council
The LDC addresses issues affecting children and adults with learning disabilities. Includes
newsletter and forum.
http://www.cldinternational.org/
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National Center For Youth With Disabilities (NCYD)
A project of the University of Minnesota's Division of General Pediatrics and Adolescent Health.
Established as an information and resource center focusing on adolescents with chronic illnesses
and disabilities, the Center's mission is to: Raise awareness of the needs of adolescents with
chronic illnesses and disabilities. Expand the knowledge and involvement of those who provide
services to youth. Promote programs and strategies which enhance the ability of adolescents and
young adults to grow, develop, work, and participate in community life to their fullest capacity.
http://www.peds.umn.edu/peds-adol/NCYD.html
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Crespar
Center for Research on the Education of Students Placed At Risk. Concerned with conducting
research, intervention, evaluation, and dissemination projects to better ensure the academic
success of children from groups that have historically been placed at risk for educational failure.
http://crespar.law.howard.edu/
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AECMN
Association for the Education of Children with Medical Needs. On its history and organisation.
http://www.aecmn.org
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ACRES
The official web site of the organization ACRES, the American Council on Rural Special Education.
http://extension.usu.edu/acres/
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Debbie Chisholm Memorial Foundation
Organization dedicated to granting wishes of terminally ill children.
http://www.dcmfwishes.org/
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Disabilities Statistics Center
The center's purpose is to produce and disseminate statistical information on disability and the
status of people with disabilities in American society and to establish and monitor indicators of
how conditions are changing over time.
http://dsc.ucsf.edu/
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Parent Educational Advocacy Training Center (PEATC)
Assists the families of children with disabilities through education, information and training.
PEATC builds parent-professional partnerships to promote success in school and community life.
Based in Virginia.
http://www.peatc.org/
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National Family Caregivers
Activities list, personal accounts, promotional materials, and sponsor information for the National
Family Caregivers Month 2001.
http://www.nfcacares.org/
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Nostra Sra. de Meritxell
Andorran center of attention to the handicapped
http://eensmeritxell.swiki.net/1
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American Society for Action on Pain
ASAP is an organization of patients who suffer from chronic pain, their families, the physicians
who treat them, and other interested citizens.
http://druglibrary.org/schaffer/asap
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The NOAH Project, Autism Spectrum Disorder Treatment and Special Education
Communities and families empowered with knowledge, resources and confidence to meaningfully help
children within Autism Spectrum Disorders creating healthier relationships and developing their
full potential.
http://www.specialchildren.org/index.asp
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Burn Survivors Throughout The World , Inc.
Nonprofit organization providing medical and psychological education on burn injuries.
http://www.burnsurvivorsttw.org/
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American Autoimmune Related Diseases Association
The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune
diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through
fostering and facilitating collaboration in the areas of education, research, and patient services
in an effective, ethical and efficient manner.
http://www.aard.org
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DisabilityOnline.com
A huge directory for everything having to do with disabilities. Very impressive site
http://www.disabilityonline.com
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Paws With A Cause
Trains assistance dogs nationally for people with disabilities and provides lifetime team support
which encourages independence. PAWS promotes awareness through education.
http://www.pawswithacause.org
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National Center for Early Development and Learning
Research at the National Center for Early Development & Learning (NCEDL), focuses on enhancing
the cognitive, social and emotional development of children from birth through age eight.
http://www.fpg.unc.edu/~ncedl
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American Cancer Society
The American Cancer Society (ACS) is a nationwide, community- based voluntary health organization.
Headquartered in Atlanta, Georgia, the ACS has state divisions and more than 3,400 local offices.
http://www.cancer.org
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Correctional Education Association
The Correctional Education Association (CEA), founded in 1946, is a non-profit, professional
association serving educators and administrators who provide services to students in correctional
settings. The CEA is the largest affiliate of the American Correctional Association
http://www.ceanational.org
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National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health
organizations dedicated to helping people with rare "orphan" diseases and assisting the
organizations that serve them. NORD is committed to the identification, treatment, and cure of rare
disorders through programs of education, advocacy, research, and service.
http://www.rarediseases.org/
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Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities is a Coalition of national consumer, advocacy,
provider and professional organizations headquartered in Washington, D.C. Since 1973, the CCD has
advocated on behalf of people of all ages with physical and mental disabilities and their families.
CCD has worked to achieve federal legislation and regulations that assure that the 54 million
children and adults with disabilities are fully integrated into the mainstream of society.
http://www.c-c-d.org
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LD - Parent Soup Education Central
We've all heard those phrases: "underachieving, sloppy, not living up to potential,
disruptive, careless." The reality behind the words is that many of our kids struggle through
school with undetected learning problems. The right help will make a difference.
http://www.parentsoup.com/edcentral/LD
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Center for an Accessible Society
Funded by the National Institute on Disability and Rehabilitation Research, The Center for An
Accessible Society is a national organization designed to focus public attention on disability and
independent living issues by disseminating information developed through NIDRR-funded research to
promote independent living.
http://www.accessiblesociety.org/
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Children, Youth, and Family Consortium
The Children, Youth, and Family Consortium was established during the Fall of 1991 to bring
together the varied competencies of the University of Minnesota and the vital resources of
Minnesota's communities to enhance the ability of individuals and organizations to address critical
health, education, and social policy concerns in ways that improve the well-being of Minnesota's
children, youth, and families.
http://www.cyfc.umn.edu
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Hospice Foundation of America
The Hospice Foundation of America is a nonprofit organization that promotes hospice care and works
to educate professionals and the families they serve in issues relating to caregiving, terminal
illness, loss and bereavement.
http://www.hospicefoundation.org
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International Association for the Scientific Study of Intellectual Disabilities (IASSID)
The International Association for the Scientific Study of Intellectual Disabilities (mental
retardation and related developmental disabilities) is an international and interdisciplinary
scientific organization that promotes worldwide research and exchange of information on
intellectual disabilities.
http://www.iassid.org
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Disability Information for Students and Professionals
A multi-featured news, jobs, and discussion resource for students from around the world studying to
support and work for individuals with disabilities.
http://www.abilityinfo.com
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American Nystagmus Network
The American Nystagmus Network seeks to provide technical and experiential information about
nystagmus and its manifestations, but not medical advice. Information relates to a wide range of
concerns including without limit, diagnosis, type, visual effects, non-visual effects, tests and
available treatment. It also covers heredity, research, and known statistical data on nystagmus.
http://www.nystagmus.org
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Hydrocephalus Association
The Hydrocephalus Association's mission is to provide support, education and advocacy for
individuals, families and professionals.
http://www.hydroassoc.org
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National Academy for Child Development
The National Academy for Child Development, Inc. is an international organization of parents and
professionals dedicated to helping children and adults reach their full potential. The over 15,000
clients served by NACD have come to us with labels including: Learning Disabled, Dyslexic,
Distractible, ADD, ADHD, Hyperactive, Down Syndrome, Fetal Alcohol Syndrome, Williams Syndrome,
Tourettes Syndrome, Rett Syndrome, Fragile X, Developmentally Delayed, PDD, Autistic, Cerebral
Palsy, Brain Injured, Comatose, Retarded, Minimal Brain Dysfunction, Normal, Accelerated and
Gifted.
http://www.nacd.org
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All Kinds Of Minds
Undertakes applied research, product development, program design, and professional training to
foster the understanding and optimal care of children with differences in learning.
http://www.allkindsofminds.org/
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Anxiety Network International
The Anxiety Network International provides information on the three largest anxiety disorders:
social anxiety, panic/agoraphobia, and generalized anxiety.
http://www.anxietynetwork.com/
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Inclusion Network
The Inclusion Network is a non-profit organization whose staff and volunteers partner to promote
inclusion of people with disabilities.
http://www.inclusion.org
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Chronic Ill Net
ChronicIllnet is the first multimedia information source on the Internet dedicated to chronic
illnesses including AIDS, cancer, Persian Gulf War Syndrome, autoimmune diseases, Chronic Fatigue
Syndrome, heart disease and neurological diseases. This site speaks to many different
people--researchers, patients, laypeople, and physicians, to name a few.
http://www.chronicillnet.org
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National Ataxia Foundation
The National Ataxia Foundation is a nonprofit organization established in 1957 with the primary
mission of encouraging and supporting research into Hereditary Ataxia, a group of neurological
disorders which are chronic and progressive conditions affecting coordination. There are more than
45 affiliated chapters and support groups throughout the U.S. and Canada.
http://www.ataxia.org
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Arthritis Foundation
Arthritis Foundation efforts center on the three-fold mission of the organization: research,
prevention and quality of life. The Arthritis Foundation currently provides nearly $20 million in
grants to nearly 300 researchers to help find a cure, prevention or better treatment for arthritis.
The Arthritis Foundation?s sponsorship of research for more than 50 years has resulted in major
treatment advances for most arthritis diseases.
http://www.arthritis.org
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Families for Early Autism Treatment
FEAT (Families for Early Autism Treatment) is a non-profit organization of parents and
professionals, designed to help families with children who have received the diagnosis of Autism or
Pervasive Developmental Disorder (PDD NOS).
http://www.feat.org
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National Sleep Foundation
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving
public health and safety by achieving public understanding of sleep and sleep disorders, and by
supporting public education, sleep-related research, and advocacy.
http://www.sleepfoundation.org
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Burn Survivors Online
Burn Survivors Online (BSO) is a leading interactive Internet resource providing general medical
information on burn injuries and a range of avenues offering peer support for burn survivors and
their families. Through the World Wide Web, BSO is able to reach out to people in need, no matter
where they reside.
http://www.burnsurvivorsonline.com
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National Fibromyalgia Partnership
NFP's mission is to make medically-accurate, quality resource information on fibromyalgia (FM)
available to our membership, health care professionals, and the community-at-large. Our Goal is to
provide informational tools so as to promote the timely and appropriate diagnosis and treatment of
fibromyalgia.
http://www.fmpartnership.org
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Lupus Foundation of America
The Lupus Foundation of America is the only nationwide voluntary organization exclusively serving
the entire lupus community, including patients, their families, physicians, researchers, and the
general public. Our mission is to educate and support those affected by lupus and find the cure.
http://www.lupus.org
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Captioned Media Program
Free-loan media (no rental fees). Open-captioned (no need for a decoder). Funded by the U.S.
Department of Education. Includes prepaid return labels. Deaf and hard of hearing persons,
teachers, parents, and others may borrow materials. Other services include provision of free
captioning information.
http://www.cfv.org
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ASL Access
ASL Access takes the position that American Sign Language - ASL - is a unique language, used by
many Deaf people and of practical value for others who appreciate visual communication. ASL Access
encourages the acquisition and advancement of ASL skills, the appreciation of ASL literature, the
provision of information in ASL, and the production of ASL video recordings. The mission of ASL
Access is to provide ASL resources to public libraries as a service to communities.
http://www.aslaccess.org
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American Academy for Cerebral Palsy and Developmental Medicine
The AACPDM is a multidisciplinary scientific society devoted to the study of cerebral palsy and
other childhood onset disabilities, to promoting professional education for the treatment and
management of these conditions, and to improving the quality of life for people with these
disabilities.
http://www.aacpdm.org/home_basic.html
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Starbright Foundation
The STARBRIGHT Foundation is dedicated to the development of projects that empower seriously ill
children to combat the medical and emotional challenges they face on a daily basis. STARBRIGHT
projects do more than educate or entertain: they address the core issues that accompany illness ?
the pain, fear, loneliness, and depression that can be as damaging as the sickness itself.
http://www.starbright.org
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American Brain Tumor Association
The American Brain Tumor Association (ABTA) exists to eliminate brain tumors through research and
to meet the needs of patients and families.
http://www.abta.org
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Childrens' Craniofacial Association
Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, dedicated to
improving the quality of life for people with facial differences and their families. Nationally
and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational
concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to
facially disfigured children and their families.
http://www.ccakids.com
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Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
CADRE supports parents, educators and administrators to benefit from the full continuum of dispute
resolution options that can prevent and resolve conflict and ultimately lead to informed
partnerships that focus on results for children and youth.
http://www.directionservice.org/cadre
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National Cued Speech Association
Cued Speech is a sound-based visual communication system which, in English, uses eight handshapes
in four different locations ("cues") in combination with the natural mouth movements of
speech, to make all the sounds of spoken language look different. Our mission is to promote and
support the effective use of Cued Speech for communication, language acquisition and literacy.
http://www.cuedspeech.org
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Council for Parents, Attorneys and Advocates
COPAA does not represent the interests of any single type of disability. COPAA's chief concern is
the availability and quality of legal and advocacy services for parents of children with all
disabilities. The prime objective is to better integrate the unique strengths of parent, advocate
and attorney to keep the costs of legal assistance manageable, while improving their availability
and quality.
http://www.copaa.net
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Internet Special Education Resources
ISER is a nationwide directory of professionals who serve the learning disabilities and special
education communities. We help parents and caregivers find local special education professionals to
help with learning disabilities and attention deficit disorder assessment, therapy, advocacy, and
other special needs.
http://www.iser.com
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National PTA
National PTA is the largest volunteer child advocacy organization in the United States. A
not-for-profit association of parents, educators, students, and other citizens active in their
schools and communities, PTA is a leader in reminding our nation of its obligations to children.
Good resources on disabilities.
http://www.pta.org
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Advocating Change Together
Advocating Change Together (ACT) started in 1979 in response to the growing concern that
individuals with developmental disabilities were being isolated and excluded from decisions
regarding their lives. ACT is a grassroots, member-controlled organization, run by and for persons
with developmental and other disabilities.
http://www.selfadvocacy.com
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Canine Companions
Canine Companions for Independence is a non-profit organization that enhances the lives of people
with disabilities by providing highly trained assistance dogs and ongoing support to ensure quality
partnerships.
http://www.caninecompanions.org
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Learn CPR
This web site is to be used as a free guide and an informational resource, but it cannot replace
real CPR or first aid training. Please try to attend a CPR training course in your community and
help save a life. The information in this web site is based, in part, on guidelines contained in
American Heart Association, Guidelines 2000 for Cardiopulmonary Resuscitation and Emergency
Cardiovascular Care.
http://depts.washington.edu/learncpr/index.html
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Muscular Dystrophy Association
The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between
scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than
a million Americans.
http://www.mdausa.org
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Aplastic Anemia and MDS International Foundation
AAMDS's mission is to serve as a resource directory for patient assistance and emotional support;
provide educational materials and updated medical information; and financially support research to
find effective treatments for aplastic anemia and myelodysplastic syndromes.
http://www.aamds.org
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Wrightslaw
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date
information about effective advocacy for children with disabilities. You'll find hundreds of
articles, cases, newsletters, and other information about special education law and advocacy in the
Wrightslaw Advocacy and Law Libraries.
http://www.wrightslaw.com
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AVKO: Dyslexia Research Foundation
The AVKO Dyslexia Research Foundation has been founded to help determine: What dyslexia is, why
traditional methods of teaching reading and writing fail to help most dyslexics learn to read and
write. What techniques seem to the best to teach dyslexics, what concepts are necessary for a
dyslexic to learn, and what materials work best with dyslexics. What is needed to be done to raise
the level of literacy to the point where the words, illiteracy, phonemic awareness, learning
disabilities, dysgraphia, family literacy, adult literacy, and illegible handwriting will no longer
have relevance.
http://www.avko.org
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Sidran: Tramautic Stress Foundation
Sidran is a nonprofit charitable organization devoted to education, advocacy, and research to
benefit people who are suffering from injuries of traumatic stress. Whether caused by family
violence, crime, disasters, war, or any other overwhelming experience, the disabling effects of
trauma can be overcome with understanding, support, and appropriate treatment.
http://www.sidran.org
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Bazelon Center for Mental Health Law
The Judge David L. Bazelon Center for Mental Health Law is a nonprofit legal advocacy organization
based in Washington D.C. Our name honors the federal appeals court judge whose landmark decisions
pioneered the field of mental health law, and our advocacy is based on the principle that every
individual is entitled to choice and dignity.
http://www.bazelon.org/who.html
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Center for Law and Education
Educational Rights of Students with Disabilities Project CLE has worked since its inception to
vindicate the right of all students with disabilities to full and equal opportunity in public
education, with a particular emphasis on issues critical to low-income children and youth. CLE also
publishes materials concerning the legal rights of students with disabilities.
http://www.cleweb.org/issues/rights.htm
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Adolescence Directory On-Line
Electronic guide to information on adolescent issues. Offers web resources for educators,
counselors, parents, researchers, health practitioners, and teens.
http://education.indiana.edu/cas/adol/adol.html
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Assistive Media
The mission of Assistive Media is to heighten the educational, cultural, and quality-of-living
standard for people with disabilities and help achieve independence and become better integrated
within the mainstream of society and community life in general. Assistive Media accomplishes this
by providing free-of-charge, copyright-approved, high caliber audio literary works to the
world-wide disability community via the Internet effectively, inexpensively and efficiently.
http://www.assistivemedia.org
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Mobility International
As a US-based national non-profit organization, the mission of Mobility International USA (MIUSA)
is to empower people with disabilities around the world through international exchange,
information, technical assistance and training, and to ensure the inclusion of people with
disabilities in international exchange and development programs
http://www.miusa.org
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Christopher Reeve Paralysis Foundation
The Christopher Reeve Paralysis Foundation (CRPF) encourages and supports research to develop
effective treatments and a cure for paralysis caused by spinal cord injury and other central
nervous system disorders. The Foundation evaluates and selects these research programs using
councils of internationally renowned neuroscientists and clinicians. The Foundation also allocates
a portion of its resources to grants that improve the quality of life for people with disabilities.
http://www.paralysis.org
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American Music Therapy Association
Founded in 1998, AMTA's purpose is the progressive development of the therapeutic use of music in
rehabilitation, special education, and community settings. Predecessors to the American Music
Therapy Association included the National Association for Music Therapy founded in 1950 and the
American Association for Music Therapy founded in 1971. AMTA is committed to the advancement of
education, training, professional standards, credentials, and research in support of the music
therapy profession.
http://www.musictherapy.org
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Asthma and Allergy Foundations of America
The Asthma and Allergy Foundation of America (AAFA) is the premier patient organization dedicated
to improving the quality of life for people with asthma and allergies through education, advocacy
and research. Kids and Teens section.
http://www.aafa.org
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American Academy of Allergy Asthma and Immunology
Study and treatment of allergic diseases through education, research and cooperation. Physician
referral directory. Kids only section.
http://www.aaaai.org
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Obsessive Compulsive Foundation
Provides support to educate the public and professional communities about OCD and related
disorders; to provide assistance to individuals with OCD and related disorders, their family and
friends; and to fund research into the causes and effective treatments of OCD and related
disorders.
http://www.ocfoundation.org
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On A Roll Talk Radio
This site offer a link to a radio talk show devoted to individuals with special needs. Other
resources are available. You will need RealPlayer to listen to the broadcasts. You can download a
free copy of RealPlayer from the On A Roll Talk Radio site.
http://www.onarollradio.com
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SpecialEdLaw
SpecialEdLaw.net is a project of Stinson Law Associates, P.C. & Center for Education Rights.
SpecialEdLaw.net is a comprehensive site dealing with all aspects of laws relating to individuals
with disabilitites
http://specialedlaw.net/index.mv
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National Library Service for the Blind and Physically Handicapped
A free national library program of braille and recorded materials for blind and physically
handicapped persons is administered by the National Library Service for the Blind and Physically
Handicapped (NLS), Library of Congress. Under a special provision of the U.S. copyright law and
with the permission of authors and publishers of works not covered by the provision, NLS selects
and produces full-length books and magazines in braille and recorded formats.
http://www.loc.gov/nls
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American Printing House for the Blind
Producing books, magazines, and other materials in braille, large print, recorded, and digital
formats, writing and recording equipment, materials for teaching blind students, and special
supplies used in education and by adults.
http://www.aph.org
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Recordings for the Blind and Dyslexic
RFB&D is the nation's educational library for people with print disabilities. We provide
educational materials in recorded and computerized formats from kindergarten through postgraduate
level. Materials are for all people who cannot effectively read standard print because of a visual,
perceptual or other physical disability.
http://www.rfbd.org
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National Association of Protection and Advocacy Systems
Nationwide network of congressionally mandated, legally-based disability rights agencies. P&A
agencies have the authority to provide legal representation and other advocacy services, under all
federal and state laws, to all people with disabilities (based on a system of priorities for
services).
http://www.protectionandadvocacy.com
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SpEdEx
Whether you are an educator, professional, parent, consumer, student, or just someone interested in
special education, we hope that you find what you need here at SpEdEx. We have strived to provide
resources such as links, online documents, listings of professionals, job listings, school and
university listings, conference announcements, a discussion area, and "poster sessions"
in easy-to-use formats.
http://www.spedex.com/main_graphics.htm
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National Sports Center for the Disabled
The National Sports Center for the Disabled (NSCD), is an innovative non-profit organization that
provides recreation for children and adults with disabilities.
http://www.nscd.org
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PUSH America
PUSH America is the national outreach project of Pi Kappa Phi Fraternity. Because of our commitment
to brotherhood, we provide leadership opportunities, services and education to promote a greater
understanding of persons who have developmental disabilities.
http://www.pushamerica.org
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National Center for the Dissemination of Research Research
Outcomes of disability research should offer great utility to people with disabilities and their
families, practitioners engaged in various types of disability service delivery, scientists and
researchers, policymakers, journalists, healthcare providers, employers, and many others.
http://www.ncddr.org
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Family and Advocates Partnership in Education
The Family & Advocates Partnership for Education (FAPE) Web site is a new project which aims to
inform and educate families and advocates about the Individuals with Disabilities Education Act of
1997 and promising practices.
http://www.fape.org
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Our-Kids
Our-Kids is a "Family" of parents, caregivers and others who are working with children
with physical and/or mental disabilities and delays. We call the list "Our-Kids". While
it isn't exactingly descriptive, it avoids the pitfalls of labeling our kids anything but what they
most certainly are: The wonderful little people in our lives.
http://www.our-kids.org
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Little People of America
Little People of America, Inc. (LPA), will assist dwarfs with their physical and developmental
concerns resulting from short stature. By providing medical, environmental, educational,
vocational, and parental guidance, short-statured individuals and their families may enhance their
lives and lifestyles with minimal limitations. Through peer support and personal example, our
members will be supportive of all those who reach out to LPA. Lastly, by networking with national
and international growth-related and genetic-support groups, LPA will enhance knowledge and support
of short-statured individuals.
http://www.lpaonline.org
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National Fathers Network
The National Fathers Network (NFN) advocates for and provides resources and support to all men who
have children with special needs through: Development of national and statewide databases of
fathers from diverse ethnic, racial, and geographic backgrounds; Development of father support and
mentoring programs; Development of curriculum (monographs and videos) designed to enhance the
involvement of fathers in the home and service provision (i.e., health care settings, schools);
http://www.fathersnetwork.org
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Epilepsy Foundation
The Epilepsy Foundation is a national, charitable organization, founded in 1968 as the Epilepsy
Foundation of America. The only such organization wholly dedicated to the welfare of people with
epilepsy, our mission is simple: to work for children and adults affected by seizures through
research, education, advocacy and service.
http://www.epilepsyfoundation.org
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HotBraille.Com
Not technically an organization, however, a valuable resource for anyone with, or with an interest
in, a hearing impairment. HotBraille's mission statement can be summed up in two words: Enable
communication. We do this by providing an accessible website that offers anyone the opportunity to
send a Braille letter. We also enable Internet users to connect with each other using our community
messaging services.
http://www.hotbraille.com
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Very Special Arts
VSA arts is an International organization that creates learning opportunities through the arts for
people with disabilities. The organization offers arts-based programs in creative writing, dance,
drama, music and the visual arts implemented primarily through our vast affiliate network in 41
states and the District of Columbia and 86 international affiliates in 83 countries. VSA arts'
programs now serve 4.3 million Americans and 1.3 million people in other parts of the world.
http://www.vsarts.org
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Special Needs - Special Kids: Disability Awareness
The objectives of this site include promoting the awareness of children with special needs of all
kinds; promoting brighter futures for them and their families; and to provide support and education
resources for their families, and those who support them.
http://members.tripod.com/~imaware/index.html
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National Institute of Mental Health
The public section offers information from NIMH about the symptoms, diagnosis, and treatment of
mental illnesses. Included are brochures and information sheets, reports, press releases, fact
sheets, and other educational materials.
http://www.nimh.nih.gov/publicat/index.cfm
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Center for Applied Special Technology
We believe that the most effective strategy for expanding educational opportunities for individuals
with disabilities is through Universal Design for Learning. Our work now focuses the development of
learning models, approaches, and tools that are usable by a wide range of learners and CAST's
impact is seen locally, nationally, and internationally.
http://www.cast.org
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Alexander Graham Bell Association for the Deaf and Hard of Hearing
The Alexander Graham Bell Association for the Deaf and Hard of Hearing is one of the world's
largest membership organizations and information centers on hearing loss and the auditory
approach. AG Bell focuses specifically on children with hearing loss, providing ongoing support and
advocacy for parents, professionals and other interested parties.
http://www.agbell.org
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Federation of Families for Children's Mental Health
To address the unique needs of children and youth with emotional, behavioral or mental disorders
from birth through transition to adulthood. To ensure the rights of full citizenship, support and
access to community-based services for all children and youth with emotional, behavioral or mental
disorders and their families. To provide information and engage in advocacy regarding research,
prevention, early intervention, family support, education, transition services and other services
needed by these children, youth and their families
http://www.ffcmh.org
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National Institute of Neurological Disorders
Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and
treatment of neurological disorders and stroke, and supports basic research in related scientific
areas.
http://www.ninds.nih.gov
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National Center to Improve Practice in Special Education
The National Center to Improve Practice was federally funded project to improve educational
outcomes for students with disabilities by promoting the effective use of assistive and
instructional technologies among educators and related personnel serving these students.
http://www2.edc.org/NCIP
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Special Friends Foundation
The primary mission of the Special Friends Foundation is to enable families to understand quickly
what Rubinstein-Taybi Syndrome (RTS) is all about and what resources are available.
http://www.specialfriends.org/schoolsystemin.html
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United Cerebral Palsy
This site serves as the gateway to all state and local United Cerebral Palsy chapters.
http://www.ucp.org
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Coordinated Campaign for Learning Disabilities
Six nonprofit leaders in the field of learning disabilities form the core of the Coordinated
Campaign for Learning Disabilities (CCLD): Organizations include: Council for Learning
Disabilities, Division for Learning Disabilities, International Dyslexia Association, National
Center for Learning Disabilities, Learning Disabilities Association, and the Schwab Learning
Center. These organizations work together to make people aware of learning disabilities, share
information with parents and promote the need for early
detection and intervention.
http://www.aboutld.org
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Child and Adolescent Bipolar Foundation
Early intervention and treatment offers the best chance for children with bipolar disorder to
achieve stability, gain the best possible level of wellness, and grow up to enjoy their gifts and
build upon their strengths. Proper treatment can minimize the adverse effects of the illness on
their lives and the lives of those who love them
http://www.bpkids.org
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International Rett Syndrome Association
The mission of the IRSA is: to support and encourage medical research to determine the cause and
find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide
informational and emotional support to families of children with Rett syndrome.
http://www.rettsyndrome.org
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Scoliosis Association, The
The Scoliosis Association, Inc. is a non-profit, volunteer non-medical organization. Since 1974, we
have been helping those with scoliosis by providing information and having support groups and
information lines.
http://www.scoliosis-assoc.org
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ParentPals
Parent Pals is sponsored by Ameri-Corp Speech and Hearing. Our goal is to provide special education
and gifted information, continuing education, support, weekly tips, games, book resources, and news
and views for parents and professionals. Therapists, audiologists, teachers, nurses and physicians
contribute information on the following subjects: ADHD, autism, deaf and hard of hearing,
emotionally disturbed, homeschooling, gifted, learning disabilities, mental retardation,
orthopedically impaired, otherwise health impaired, severe and/or multiple disabilities, speech and
language impairment, stuttering, traumatic brain injury and, visually impaired.
http://www.parentpals.com/index2.html
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EASI Equal Access to Software and Information
A resource to the education community that provides information and guidance in the area of
access-to-information technologies by individuals with disabilities.
http://www.rit.edu/~easi/
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iCanOnline
iCanOnline brings together content, community and resources in one place that is easy to navigate
and welcomes your input. This site is for individuals of all ages; however, it includes many
resources relating to child and youth.
http://www.icanonline.net/index.html
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National Center for Injury Prevention and Control
The National Center for Injury Prevention and Control (NCIPC) is the lead federal agency for injury
prevention, NCIPC works closely with other federal agencies; national, state, and local
organizations; state and local health departments; and research institutions.
http://www.cdc.gov/ncipc
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Best Buddies
Best Buddies is a non-profit organization dedicated to enhancing the lives of people with mental
retardation by providing opportunities for one-to-one friendships and integrated employment. Best
Buddies has grown from one chapter on one college campus to a vibrant, international organization
involving participants annually on more than 500 middle school, high school and college campuses in
the United States, Canada, Egypt, and Greece. In our 11 years of existence,
http://www.bestbuddies.org
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National Institute on Deafness and Other Communication Disorders
The National Institute on Deafness and Other Communication Disorders (NIDCD) is part of the
National Institutes of Health (NIH). We are part of the U.S. Government, under the Department of
Health and Human Services (HHS). Provides comprehensive information on all areas of deafness and
other communication disorders.
http://www.nidcd.nih.gov/index.htm
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Children With Disabilities
The Children With Disabilities Web site offers families, service providers, and other interested
individuals information about advocacy, education, employment, health, housing, recreation,
technical assistance, and transportation covering a broad array of developmental, physical, and
emotional disabilities.
http://www.childrenwithdisabilities.ncjrs.org
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Bandaides and Blackboards
The intent of the site is to sensitize people to what it's like to grow up with a medical problem.
Too often, youngsters so affected must cope with stigma as well as with their medical conditions.
Teasing often accompanies this stigma, and adds a layer of pain to their experience of childhood.
Unnecessary pain. Pain that isolates. Pain that affects not only the children who look or act or
even just feel different, but all of the children in the classroom.
http://funrsc.fairfield.edu/~jfleitas/contents.html
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Association for Persons with Severe Handicaps (TASH)
TASH is an international association of people with disabilities, their family members, other
advocates, and professionals fighting for a society in which inclusion of all people in all aspects
of society is the norm.
http://www.TASH.org
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Angelman Syndrome Foundation
ASF's Mission is to advance the awareness and treatment of Angelman Syndrome through education,
information exchange and research.
http://www.angelman.org
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Tourette Syndrome Association
Develops and disseminates educational materials; stimulates support for research; apprises members
of rights, services, and benefits provided by government and other organizations
http://www.tsa-usa.org
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Eating Disorders Education Organization
EDEO is involved in providing information on eating disorders and offering support to families and
friends of individuals with eating disorders.
http://www.edeo.org/
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Osteogenesis Imperfecta Foundation
Supports and encourages medical research, educates the public, and disseminates information to
patients, their families, and medical professionals
http://www.oif.org
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Nonverbal Learning Disabilities Association
The NLDA promotes education, support, and advocacy for people with Nonverbal Learning Disabilities,
and for professionals and family members.
http://www.nlda.org
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American Diabetes Association
The mission of the organization is to prevent and cure diabetes, and to improve the lives of all
people affected by diabetes. To fulfill this mission, the American Diabetes Association funds
research, publishes scientific findings, provides information and other services to people with
diabetes, their families, health care professionals and the public and advocates for scientific
research and for the rights of people with diabetes.
http://www.diabetes.org/
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Turner Syndrome Society of the United States
Mission is to increase public awareness and understanding of Turner Syndrome; increase
understanding of those affected by Turner Syndrome about the condition and its associated
problems; provide a forum where those affected by Turner Syndrome can become acquainted with
others in similar situations; and work together with medical and health-care professionals to
better understand the condition through research and communication of ideas.
http://www.turner-syndrome-us.org/
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International Federation for Hydrocephalus and Spina Bifida
Its mission is to improve the quality of life of people with Hydrocephalus and Spina Bifida
throughout the world. To decrease the prevalence of Hydrocephalus and/or Spina Bifida by primary
prevention.
http://www.ifglobal.org/
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Brain Injury Association
The mission of the Brain Injury Association is to create a better future through brain injury
prevention, research, education and advocacy. This site provides a vast amount of information and
state resources.
http://www.biausa.org
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Spina Bifida Association of American
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida
and to enhance the lives of all affected. The Association was founded in 1973 to address the
specific needs of the spina bifida community and serves as the national representative of over 70
chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals
each year.
http://www.sbaa.org
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TechDis
U.K.-based service aimed at enhancing access for those with learning difficulties and/or
disabilities, to learning and teaching, research and administration across higher and further
education through the use of information and communication technologies. (United Kingdom)
http://www.techdis.ac.uk/
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National Spinal Cord Injury Association
The NSCIA has many chapters throughout the United States. Members work with local and national
officials and agencies to develop better programs and services and act as community advocates for
improved access, housing, transportation, employment, and leisure time activities for disabled
people. Peer support and other services are also provided. These are fundamental aspects of living
that 500,000 people with spinal cord injuries or diseases must cope with after they have been
rehabilitated and have returned to community life.
http://www.spinalcord.org
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National Down Syndrome Society
The National Down Syndrome Society is a not-for-profit organization that has become the largest
non-governmental supporter of Down syndrome research in the United States. Today, NDSS continues to
increase public awareness about Down syndrome and discover its underlying causes through research,
education and advocacy.
http://www.ndss.org
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National Mental Health Services Knowledge Exchange Network (KEN)
KEN provides a wealth of information regarding mental health. It has an extensive section
dedicated to services and resources for children and adolescents. Hundreds of publications are
available along with links to other sites dealing mental health issues.
http://www.mentalhealth.org
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International Dyslexia Organization
The International Dyslexia Association is an international, non-profit organization dedicated to
the study and treatment of the learning disability, dyslexia. The IDA was established to continue
the pioneering work of Dr. Samuel T. Orton, a neurologist who was one of the first to begin to
identify dyslexia and develop effective teaching approaches.
http://www.interdys.org
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ClercCenter at Gallaudet University
The national mission is to develop, collect, disseminate, conduct research into and evaluate the
most effective literacy strategies, family education methods, and school- to-work transition
practices with deaf and hard of hearing students.
http://ClercCenter.gallaudet.edu/InfoToGo/index.html
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Family Village
A global community that integrates information, resources, and communication opportunities on the
Internet for persons with cognitive and other disabilities, for their families, and for those that
provide them services and support.
http://www.familyvillage.wisc.edu/index.htmlx
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CHERAB (Apraxis)
CHERAB Foundation is a Non-Profit Organization, a partnership of families and professionals working
together to provide support and information for those who care for children that are late talkers,
or for those diagnosed with apraxia. Our goal to is raise awareness about the importance of Early
Diagnosis and Early Intervention. We also wish to raise awareness about the world's number one
disability, communication disorders, and when, how and where to go for help.
http://www.shopinservice.com/latetalker.htm
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HalfThePlanet
HalfthePlanet was created to be the authoritative online source of reliable tools for independent
living for the disability community. We are dedicated to the belief that only when the barriers to
accessibility are removed and practical solutions to everyday life are provided can all people live
independent and fulfilling lives.
http://www.halftheplanet.org/
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Adolescent Health Transition Project
Designed to help smooth the transition from pediatric to adult health care for adolescents with
special health care needs. Includes resource information, materials, and links to other people with
an interest in health transition issues.
http://depts.washington.edu/healthtr
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American Academy of Pediatrics
The mission of the American Academy of Pediatrics is to attain optimal physical, mental and social
health and well-being for all infants, children, adolescents and young adults.
http://www.aap.org
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Prevent Blindness America
Founded in 1908, Prevent Blindness America® is the nation's leading volunteer eye health and
safety organization dedicated to fighting blindness and saving sight. Prevent Blindness America
serves millions of people each year through public and professional education, community and
patient services programs and research. Together with a network of affiliates, divisions and
chapters, it's committed to eliminating preventable blindness in America.
http://www.preventblindness.org/index.html
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disAbility.gov
A comprehensive site of Federal programs for families dealing with disabilities. Includes a section
specifically related to children.
http://disAbility.gov/CSS/Default.asp
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Tyler For Life Foundation, The
The Tyler For Life Foundation, Inc. is a non-profit voluntary organization whose mission is to
improve the lives of babies by preventing mental retardation and death resulting from disorders
detectable through newborn screening.
http://www.tylerforlife.com
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MAX Foundation
The MAX Foundation is a not-for-profit organization dedicated to the promotion of special education
awareness and to support deserving schools, research centers and organizations providing for
children with special needs.
http://maxfoundation.org
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American Society for Deaf Children
An national, independent non-profit organization whose purpose is providing support, encouragement,
and information to families raising children who are deaf or hard of hearing.
http://www.deafchildren.org/
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National Mental Health Association
The NMHA is an excellent resource for consumer, professionals, advocates or anyone interested in
all aspects of mental health. Contains legislative alerts, media reviews, and a vast array of
materials.
http://www.nmha.org/
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National Arts and Disability Center
The National Arts and Disability Center (NADC) is the national information dissemination, technical
assistance and referral center specializing in the field of arts and disability. The NADC is
dedicated to promoting the full inclusion of children and adults with disabilities into the
visual-, performing-, media, and literary-arts communities. Its resource directories, annotated
bibliographies, related links and conferences serve to advance artists with disabilities and
accessibility to the arts.
http://nadc.ucla.edu
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Prader-Willi Syndrome Association
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by
Prader-Willi Syndrome (PWS), their families, and interested professionals. To provide information,
education, and support services to its members.
http://www.pwsausa.org
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American Foundation for the Blind (AFB)
The foundation's mission is to enable people who are blind or visually impaired to achieve
equality of access and opportunity that will ensure freedom of choice in their lives.
http://www.afb.org/
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Council for Disability Rights
On national, state, and local levels, the Council for Disability Rights advances the rights of
people with disabilities. The Council promotes public policy and legislation, public awareness
through education, and provides information and referral services.
http://www.disabilityrights.org/
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American Association on Mental Retardation (AAMR)
Promotes global development and dissemination of progressive policies, sound research, effective
practices, and universal human rights for people with intellectual disabilities.
http://www.aamr.org/
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President's Committee on Mental Retardation
Acts in an advisory capacity to the President and the Secretary of Health and Human Services on
matters relating to programs and services for people with mental retardation.
http://www.acf.dhhs.gov/programs/opa/facts/pcmrfs.htm
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National Association of the Deaf
The NAD safeguards the accessibility and civil rights of 28 million deaf and hard of hearing
Americans in a variety of areas including education, employment, health care and social services,
and telecommunications.
http://www.nad.org
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National Association for the Education of Young Children
The National Association for the Education of Young Children (NAEYC) is the nation's largest
organization of early childhood professionals and others dedicated to improving the quality of
early childhood education programs for children birth through age eight.
http://www.naeyc.org/default.htm
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American Council of the Blind
Strives to improve the well-being of all blind and visually impaired people by serving as a
representative national organization of blind people; elevating the social, economic and cultural
levels of blind people; and improving educational and rehabilitation facilities and opportunities.
http://acb.org/
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National Alliance for the Mentally Ill
The mission of the National Alliance for the Mentally Ill is "to eradicate mental illness and
improve the quality of life of those affected by these diseases." NAMI has affiliate
organizations in every state.
http://www.nami.org/
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Schwab Learning
Dedicated to raising awareness about learning differences and to providing parents with the
information, resources and support they need to improve the lives of kids with learning
differences.
http://www.schwablearning.org/
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National Center for Learning Disabilities
NCLD's Mission is to promote public awareness and understanding of children and adults with
learning disabilities, and to provide national leadership on their behalf, so they may achieve
their potential and enjoy full participation in our society.
http://www.ncld.org/
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National Center on Education, Disability, and Juvenile Justice
NCEDJJ is a collaborative research, training, technical assistance and dissemination program
designed to develop more effective responses to the needs of youth with disabilities in the
juvenile justice system or those at-risk for involvement with the Juvenile Justice System.
http://www.edjj.org
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National Organization on Disabilities
The National Organization on Disability promotes the full and equal participation of America's 54
million men, women and children with disabilities in all aspects of life. N.O.D. was founded in
1982 at the conclusion of the United Nations International Year of Disabled Persons. N.O.D. is the
only national disability network organization concerned with all disabilities, all age groups and
all disability issues.
http://www.nod.org/
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United Ostomy Association
The United Ostomy Association is a volunteer-based health organization dedicated to providing
education, information, support and advocacy for people who have had or will have intestinal or
urinary diversions.
http://www.uoa.org
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Autism Society of America
The society's mission is to promote lifelong access and opportunities for persons within the autism
spectrum and their families.
http://www.autism-society.org/
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C.H.A.D.D -Children and Adults with Attention Deficit Disorders
A national non-profit organization representing children and adults with
attention-deficit/hyperactivity disorder (AD/HD). CHADD works to improve the lives of people with
attention-deficit/hyperactivity disorder through education, advocacy and support.
http://www.chadd.org/
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The Center for Disease Control and Prevention: BAM! Body and Mind
Provide information, materials for students and classrooms. Has related information about birth
defects, child development, and disability and health.
http://www.bam.gov/
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World Association of Persons with Disabilities
WAPD advances the interests of persons with disAbilities at national, state, local and home
levels. We believe that all are entitled to high quality of life. Over ten years of
"grassroots" planning and growth have catapulted the association to a world leadership
position, advancing the soundness and empowerment of the so called "disAbled" everywhere.
http://wapd.org/index.html
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Closing The Gap
Focuses on computer technology for people with special needs through its bi-monthly newspaper,
annual international conference and extensive web site.
http://www.closingthegap.com/
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Smile Train, The
The Smile Train is a non-profit organization that is committed to eradicating the problem of cleft
lips and palates.
http://www.smiletrain.org/
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Center for the Study of Autism
Provides resources for both professions and family members of individuals with autism. Includes
interventions, family support, and stories of persons with autism.
http://www.autism.org/
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Council for Exceptional Children
Largest international professional organization dedicated to improving educational outcomes for
individuals with exceptionalities. Primarily for professionals in the field of special education.
http://www.cec.sped.org/
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