| Directory > Regional > Europe > United Kingdom > Health > Conditions and Diseases > Genetic Disorders > Down's Syndrome National Down Syndrome Cytogenetic Register
Information about an anonymous register allowing researchers to analyse possible causal factors.
Includes interpretation of the results.
http://www.mds.qmw.ac.uk/wolfson/ndscr/
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Learning about Intellectual Disabilities and Health
Collaboration between the Down's Syndrome Association and St George's Hospital Medical School,
University of London, has produced a comprehensive information resource, with particular emphasis
on the ability of medical professions to empower their patients.
http://www.intellectualdisability.info/
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Down Syndrome Research Foundation
A parent-based charity supporting research into the medical conditions collectively called Down's
syndrome. Information on research, nutrition education, health care guidelines, and alternative
therapies. Includes parents' stories.
http://www.dsrf.co.uk/
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PODS (Parents of Down's Syndrome)
Provides support, friendship and information for parents and carers of children with Down's
Syndrome in Barnet and surrounding areas. Information on activities, stories, and contact details.
http://www.pods.org.uk/
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Down's Syndrome Medical Interest Group
Information for healthcare professionals, including UK-specific growth charts, guidelines, and
medical information library.
http://www.dsmig.org.uk/
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Ups and Downs
A support group of parents of children with Down's Syndrome in Southampton. Information about
activities and resources, with contact details.
http://mysite.freeserve.com/UpsandDowns/
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The Young Down's Group
A support group for parents of young children with Down's Syndrome in Norwich. Meeting and contact
details.
http://www.paston.co.uk/users/maygurney/dsa.html
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Down's Heart Group
Offers support and information to families who have a member with Down's Syndrome and congenital
heart defects. Forum and contact details.
http://www.downs-heart.downsnet.org/
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Down's Syndrome - Wales
Offers help and support to individuals with Down's Syndrome, their families, and the carers and
professionals. Includes information about the condition and common misconceptions. (Cymraeg and
English)
http://www.downssyndromewales.co.uk/
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Down's Syndrome Association - South West Thames Area
Information on their activities and contact details.
http://www.downsyndrome.org.uk/
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Down's Syndrome North East
Branch of the Down's Syndrome Association offers parental counselling, subsidised leisure
activities, Christmas parties and events, play-groups, and newsletters to people with Down's
Syndrome, their families and their carers.
http://www.dsa-northeast.org.uk/
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Down's Syndrome Association London
Support group for parents and carers of people with Down's Syndrome. Details of meetings and
activities.
http://www.downs-syndrome-london.org.uk/
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Down Syndrome Liverpool
Providing support and information to people with Down Syndrome, their parents and carers in the
Liverpool area with links to other sites. Includes an online newsletter.
http://www.ds-liverpool.org.uk/
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Lincolnshire Down's Syndrome Support Group
Contact details; also includes poems, stories, articles, and book reviews.
http://www.emandan.freeserve.co.uk/
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GMDSA (Greater Manchester Branch of the Down's Association)
Provides information on Down's syndrome and support to parents, carers and professionals. Online
newsletter, and list of resources.
http://members.aol.com/GMDSA/
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Downs Syndrome Association - Bristol Branch
A parent-led support group for the parents and carers of those with Downs Syndrome. Information
about events and support resources.
http://www.dsa-bristol.org.uk/
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Down's Syndrome Association
Provides information, counselling and support for people with Down's syndrome, their families and
carers, as well as for professionals. Also a campaigning organisation.
http://www.downs-syndrome.org.uk/
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UK Resources for Down's Syndrome
A comprehensive set of addresses and links for Down's Syndrome on the web in the UK on the web.
Includes links to government agencies, voluntary organisations and the full text of the 1996
Education Act.
http://www.43green.freeserve.co.uk/uk_downs_syndrome/ukdsinfo.html
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Down's Syndrome Scotland
Information about the condition, with advice and guidance for individuals affected, their families
and carers. Includes information about publications, membership and activities of the
organisation.
http://www.dsscotland.org.uk/
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