| Directory > Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis NHLBI: Facts about Cystic Fibrosis
Information, diagnosis and treatment options.
http://www.nhlbi.nih.gov/health/public/lung/other/cf.htm
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CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical
trials, gene therapy, testing, associations, research and events.
http://cysticfibrosis.com/
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A-Z Directory of Cystic Fibrosis Resources
Biomedical directory with listings of hospitals, charities, research, and information by topic and
location.
http://www.cellscience.com/CFmain.html
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Irri Shark's Page
About the '65 roses' story.
http://hometown.aol.com/irrishark/page/index.htm
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Home Page-Harminder
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also,
what new treatments might devolop if the theory behind this article prove true.
http://student.biology.arizona.edu/honors96/group9/Page2.html
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Sixty Five Roses - Cystic Fibrosis Resource Center
Provides support, information and answers about this disease. CF news, events, links and chat
rooms.
http://www.65roses.com
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Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
http://www.cysticfibrosis.co.uk
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Saving Russian Children with CF
Article about saving Russian children with CF.
http://www.globalideasbank.org/BI/BI-74.HTML
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Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open
access section is also available to both patients and family
http://www.cysticfibrosismedicine.com
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The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family
and their struggle with having a chronically ill child.
http://www.spiritoflo.com
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Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in
Tennessee.
http://www.cindys-friends.com
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CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites,
a message forum and a wide variety of information on management of the disease.
http://www.cfprescriber.com/
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Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other
countries (what their healthcare entitlements are), pointers for teachers of children with CF, and
a list of services and support.
http://www.cysticfibrosiswa.org
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It Can't Be CF
Symptoms, misconceptions, diagnosis stories, general information, links and resources.
http://home.att.net/~cfdiagnosis/
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Jewish Genetic Diseases - Cystic Fibrosis
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent
(Ashkenazi Jews), diagnosis, treatment, and screening.
http://www.mazornet.com/genetics/cystic_fibrosis.asp
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Manual for Cystic Fibrosis Patients and their Families
From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm
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Cystic Fibrosis Management
Article detailing therapeutic options for co-management.
http://www.thorne.com/altmedrev/fulltext/cystic.html
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The Breathing Room
Guidance about the art of living with cystic fibrosis.
http://www.thebreathingroom.org
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Yahoo! Health - Cystic Fibrosis
http://health.yahoo.com/health/dc/000107/0.html
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Cystic Fibrosis Links
Cystic Fibrosis Links and Information
http://www.goodgulf.com/cystic.html
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Cystic Fibrosis Health FactSheet
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be
downloaded in Acrobat format
http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html
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Cystic Fibrosis I.Q. Test
Test what you know about cystic fibrosis.
http://www.aarc.org/patient_education/iq_tests/cf/cf_form.html
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Cystic Fibrosis Resource Center
Directory about Cystic Fibrosis, including books, medical news, articles and information, links,
message boards.
http://www.healingwell.com/cysticfibrosis/
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MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles
and personal support from site specialists. Members can share data with caregivers and their
healthcare team.
http://www.mycysticfibrosis.com
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Mamas Health
Find out what Cystic Fibrosis is, the symptoms and the causes.
http://www.mamashealth.com/cfibrosis.asp
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PulmonologyChannel
Information on cystic fibrosis.
http://www.pulmonologychannel.com/cf/
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CF Advantage
The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it
offers protection against diarrhea. By Josie Clausiusz
http://wsrv.clas.virginia.edu/~rjh9u/cysfib.html
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Cyber Campus
A computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic
Fibrosis Association of Ireland (CFAI).
http://www.internet-ireland.ie/horizon/
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Future Force
Irish publication including articles on home IVs, nutrition, exercise and first person accounts of
living, dying and transplantation.
http://www.internet-ireland.ie/horizon/mag/welcome.html
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The Ortho-McNeil CF Care Website
Provides people with cystic fibrosis, family members, and the CF community with quick and easy
access to education and information.
http://www.cfcare.com
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