| Directory > Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations European Cystic Fibrosis Thematic Network
Creates a platform for scientists involved in fundamental CF research, for the more than 160
genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal
experts and representatives of the industry.
http://www.cfnetwork.be/
Reviews Rating: Not yet Rated
Whois Check
The Victoria Foundation
Helps young adults with Cystic Fibrosis and assist parents in caring for their son or daughter
at home, with the support of the Southampton CF adult team.
http://members.lycos.co.uk/victoriafoundation/
Reviews Rating: Not yet Rated
Whois Check
Reaching Out Foundation
Provides information on the programs provided by this foundation, a personal story of a person with
CF who had a double lung transplant, general information on CF, and how you can donate.
http://www.reachingoutfoundation.org/
Reviews Rating: Not yet Rated
Whois Check
Milan Foundation
Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis.
Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
http://www.milanfoundation.org
Reviews Rating: Not yet Rated
Whois Check
Lungs for Life Foundation
Provides financial assistance to cystic fibrosis and lung transplant patients.
http://Lungsforlife.org/
Reviews Rating: Not yet Rated
Whois Check
Dream Holidays Charity
The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life
threatening disease. We arrange holidays and wishes for these children with no cost to the family.
http://www.cfdreamholidays.com/
Reviews Rating: Not yet Rated
Whois Check
Cystic Fibrosis Foundation
Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those
with the disease. Providing information about the disease, treatment options, clinical trials,
research, and public policy.
http://www.cff.org/
Reviews Rating: Not yet Rated
Whois Check
CCFF Sudbury Chapter
Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local
events and information about Cystic Fibrosis.
http://www.cyberbeach.net/~cf
Reviews Rating: Not yet Rated
Whois Check
Canadian Cystic Fibrosis Foundation
Support and resources. Located in Toronto, Ontario.
http://www.cysticfibrosis.ca/
Reviews Rating: Not yet Rated
Whois Check
Boomer Esiason Foundation
A resource for those affected by this disease. Includes details about the organization, fund
raising, events and a newsletter.
http://www.esiason.org
Reviews Rating: Not yet Rated
Whois Check
National Cystic Fibrosis Awareness Committee (NCFAC)
Helps to advance the public awareness of the genetic disease. Site includes mission statement and
message board.
http://www.cfawareness.org/
Reviews Rating: Not yet Rated
Whois Check
International Cystic Fibrosis Association International Directoy
International Directory available for download and viewing.
http://www.access.ch/cfaddresses
Reviews Rating: Not yet Rated
Whois Check
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
An international network of health care professionals, researchers and consumers preparing,
maintaining, and disseminating systematic reviews of randomised control trials in the treatment of
cystic fibrosis and other genetic disorders.
http://www.liv.ac.uk/CFGD/
Reviews Rating: Not yet Rated
Whois Check
Cystic Fibrosis Victoria Inc
Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat
room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events
http://www.cysticfibrosisvic.org.au/
Reviews Rating: Not yet Rated
Whois Check
Cystic Fibrosis Worldwide
International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis
Mucoviscidosis Association.
http://www.iacfa.org/
Reviews Rating: Not yet Rated
Whois Check
Cystic Fibrosis Victoria Inc
Information about Cystic Fibrosis and the organisation, online chat room and message board.
http://www.cfv.org.au
Reviews Rating: Not yet Rated
Whois Check
I.C.F.M.A.
A not-for-profit organization for increasing cystic fibrosis awareness.
http://www.icfma.org/
Reviews Rating: Not yet Rated
Whois Check
Cystic Fibrosis Nurses: the International Specialist Group
Organization whose goals include setting and promoting high standards of nursing practice in the
treatment of persons with Cystic Fibrosis.
http://www.cfnurses.net
Reviews Rating: Not yet Rated
Whois Check
European Cystic Fibrosis Society
ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient
with cystic fibrosis by the development and distribution of knowledge in the field of cystic
fibrosis
http://www.ecfsoc.org/
Reviews Rating: Not yet Rated
Whois Check
|
