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Search Results

Web Sitesi

My Life Caring For My Son Who Has Duchenne Muscular Dystrophy
Caring for a child with the following problems duchenne muscular dystrophy,congenital adrenal
hypoplasia and glycerol kinase deficiency.
http://musculardystrophy.mysite.freeserve.com
Reviews Rating: Not yet Rated Whois Check

Duchenne/Becker Muscular Dystrophy
Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy.
Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne &
Becker Muscular Dystrophy.
http://www.ygyh.org/dmd/
Reviews Rating: Not yet Rated Whois Check

DMDpioneers.org Forums
Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and
quality of life issues for people with DMD.
http://www.dmdpioneers.org/forum/
Reviews Rating: Not yet Rated Whois Check

DMD Information and Resources for Teachers
Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
http://www.uni-potsdam.de/u/germanistik/ls_dgs/teachers.html
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Community
Message boards and chat dedicated to sharing information, offering support, and coping strategies
to better cope with this disease. Community moderated by volunteers.
http://community.healingwell.com/community/?f=43
Reviews Rating: Not yet Rated Whois Check

Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase
government spending for muscular dystrophy in the UK.
http://www.see-search.com/musculardystrophycampaign.htm
Reviews Rating: Not yet Rated Whois Check

Dr. John R. Bach - The DMD/SMA/ALS Doc
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive
Ventilation (NIV) and pulmonary care.
http://www.doctorbach.com/
Reviews Rating: Not yet Rated Whois Check

General Practice Notebook - Duchenne muscular dystrophy
Clinically-oriented information.
http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=-885719035
Reviews Rating: Not yet Rated Whois Check

FSH Friends
This site is a resource for individuals and families interested in Facioscapulohumeral Muscular
Dystrophy.
http://www.infowest.com/personal/a/alan/FSH/Friends2/
Reviews Rating: Not yet Rated Whois Check

DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
http://www.angelfire.com/band/teja/infofram.htm
Reviews Rating: Not yet Rated Whois Check

HealtHub
A brief definition of muscular dystrophy, followed by links to overviews, full text articles,
research projects and organizations.
http://www.healthubs.com/dystrophy
Reviews Rating: Not yet Rated Whois Check

A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy.
Includes an overview, medical and surgical care, general care, emotional support and every day
living.
http://www.mda.org.au/publication/guide/mdaguide.html
Reviews Rating: Not yet Rated Whois Check

Duchennes
Provides links to medical and non-medical organizations and people with Duchennes problems.
http://www.ducennes.addr.com/
Reviews Rating: Not yet Rated Whois Check

Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and
health-related articles are poetry and personal stories.
http://www.livingfortoday.org
Reviews Rating: Not yet Rated Whois Check

MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money
raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held
annually in May.
http://www.mdarideforlife.org/
Reviews Rating: Not yet Rated Whois Check

NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological
Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/health_and_medical/disorders/md.htm
Reviews Rating: Not yet Rated Whois Check

Ask NOAH About: Muscular Dystrophy
The basics, genetics, diagnosis, care and treatment, specific types and information resources. From
NOAH (New York Online Access to Health).
http://www.noah-health.org/english/illness/neuro/musdys.html
Reviews Rating: Not yet Rated Whois Check

National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact
information.
http://www.urmc.rochester.edu/nihregistry/
Reviews Rating: Not yet Rated Whois Check

DMD Options
Lifestyle options, conventional medical interventions and information for people interested in
Duchenne muscular dystrophy.
http://www.dmdoptions.com
Reviews Rating: Not yet Rated Whois Check

Becker Muscular Dystrophy Information Exchange
This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information
and communicate with others about the disease.
http://www.beckermusculardystrophy.org
Reviews Rating: Not yet Rated Whois Check

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